Showing posts with label blog. Show all posts
Showing posts with label blog. Show all posts

Wednesday, November 22, 2017

Grief Journal: Surprising




4) What has been surprising during your grief?

When my son passed away, it was soul shattering blow. The entire first year it was like there was veil shrouding the pain. Numb but not completely. I wasn't prepared for the pain  that would hit for the second year without him. The veil had lifted and there was nothing left to cushion the blow of another set of holidays and special moments without my sweet boy.

Now we're approaching the second angelversary of my sweet boy and the 3rd year without him. The depression seems to have set in sooner than it did last year. It feels deeper and darker. I find myself not doing things I would normally do. I've stayed home instead of attending get together's. Even one on ones I've canceled. I don't want to be around anyone. Not even  my family. I seclude myself. The pain keeps getting worse.

The most surprising thing during my grief has been that the pain keeps getting worse. That my heart is still beating despite the amount of pain I'm in. They say that you can die from heartbreak. They also say that time heals all wounds but that's a complete and utter lie. And despite being surrounded by family and friends, I feel all alone.


Click here to view the entire list of journal prompts for bereaved parents.

Monday, November 20, 2017

Grief Journal: Confusion


3) What has been confusing during your grief?

Grief is a "funny" thing. It messes with our hearts and our minds. So much has been confusing to be since the loss of  my son. Like how I've continued to live when my heart hurts so very much.

The most confusing for me though is the chain of events that lead to my sons death.

In November he caught a cold. He was sick yet he was his normal smiling and laughing, energetic little boy. He stayed sick for a few weeks then got better. After only 2 days he began getting sick again. On the Monday before he passed I took him to urgent care for chest xrays knowing how prone he was to pneumonia but because of how happy and energetic he was, the doctor refused.

That night he got worse. The next morning I rushed him back to urgent care, on oxygen. He was extremely exhausted but seemed fine otherwise. Suddenly in the waiting room he turned blue. They transferred him to ER where he later died suddenly of a pulmonary embolism.

Because of his weak immune system his body couldn't fight off the cold and it became a blood infection. That infection created the pulmonary embolism. If his veins hadn't been covered in so much scar tissue they would have been able to save him but years of being poked for IV's and blood draws left it impossible to gain IV access. We had just removed his mediport a year and a half prior to that.

It confuses me how he was so happy and bouncing around then suddenly he was gone. It confuses me how a cold turned into a blood infection. He confuses me that he was here and then gone the next second.


Click here to view the complete list of journal prompts.



Saturday, November 18, 2017

Grief Journal: Telling About Your Loss


2) Describe a time you told someone (who didn't already know) about your loss.

The other day I had to see a surgeon. The nurse doing the intake had to ask me a series of questions. Those questions included needing to know how many children I had. That is a hard question for me since the loss of my son.

I explained that I had my 9 year old daughter and that I lost my 4 year old son.

I then braced myself for what was surely to come next. Most people get this look of pitty in their eyes and say how sorry they are for me. It confuses me because they never look truly saddened. It's always pure pitty and I hate pitty.

This girl however didn't react whatsoever. No "I'm sorry", no look of pitty, nothings. In that moment I could have hugged her. She was the very first person not to fake it. She probably didn't care one bit but she was truthful in her actions and I was so very grateful.

There are times where I can't bring myself to tell one more person that I've lost a child. Times when I can't bear to hear one more "I'm sorry" or see one more look of pitty. For instance there's a cashier at Walmart that I've yet to be able to correct when she asks where my babies are. She just assumes they're both at home or school. I haven't found the courage to explain that my son died two years ago this December.

So being confronted with someone who was real was refreshing.


Click here to view the complete list of journal prompts.

Thursday, November 16, 2017

Grief Journal: What You Should Know


1) What would you like other people to know or do after someone loses a child?

To be perfectly honest the best thing you can do for someone when they lose a child is be there for them. It may be painful for you but I guarantee it's a trillion times painful for them and if you love them, show up.

You don't have to have the right words. In fact what you feel are the right words could very well be the wrong ones. Just hug them or hold their hand. Place your hand on their shoulder as their sobbing.

Little things will mean so much more than you can possibly imagine. Showing up on their doorstep with coffee or food is absolutely huge. During those first few weeks, everything is a blur. You forget everything, including to eat. If your at their house and you see the dishes need to be washed, just do them. Don't ask because they'll always say no. Do a load of laundry for them if it's piled up. It may seem trivial to you but it's extremely helpful.

Remember that after the funeral, they still need you. Just because they laid their child to rest doesn't mean they laid their pain to rest. They still need you to stop by and text them weeks after. Months after. 

Within a week or two after my sons memorial people stopped showing up or calling. After two months it felt like everyone forgot. At 3 months into this journey, I became so depressed  that I couldn't get out of bed. I didn't call or text anyone. No one bothered to check on me. I laid there without any concept of time. I was so engulfed in pain that I was sure my heart would stop at any second. Truthfully I prayed it would. At 6 months I tried to function but failed miserably. I felt completely alone in my grief. This is why I tell people that their loved ones need them long after the funeral. I had a friend who lost a child stand up and tell all our friends and family this very thing but they failed to follow through. 

The holidays are so hard on someone whose lost a child. They feel it even more because these are times for family. The birthday and day of loss are two big ones as well. Call them. Check on them. Let them know you remembered and your thinking of their angel as well. It means more than you'll ever imagine. 


Click here to view the complete list of journal prompts.

Wednesday, November 15, 2017

Journal Prompts for Bereaved Parents



As a parents whose lost a child I know how hard it can be to work through that grief and that pain. When my son Liam was born very sick in 2011, I needed an outlet and a way to remember the ups and downs on NICU and the CDH journey. I found writing in a journal or even blogging helped me better than anything else. You can be completely honest in your journal without fear of judgment. Sometimes all I needed was to write down all my fears and worries to work past them. So why would my grief be any different? I decided to start actively working through my grief through journaling and wanted to share these prompts with you. My hope is that they help us all in some way.

To see my answers click the "Click here" after each journal prompt.

1) What would you like  other people to know or do after someone loses a child?    Click here

2) Describe a time you told someone (who didn't already know) about your loss.     Click here

3) What has been confusing during your grief?    Click here

4) What has been surprising during your grief?    Click here

5) What have you been thankful for during your grief?    Click here

6) How did you choose your child's name?    Click here

7) What do you now find difficult to do that you didn't before you lost a child?     Click here

8) If I could tell my child something, I would say...    Click here

9)Some well-meaning but hurtful things people have said or done are...    Click here

10) What are some secondary loses to the loss of your child.    Click here

11) Try writing your child's story in 100 words or less.   Click here

12) What quote or scripture has been meaningful or comforting? Why?   Click here

13) Write a bucket list.  Click here

14) Plan something in honor of your child on a day that means something.  Click here

15) Write a letter to your child. Click here

16) Write an acrostic poem using your child's name.    Click here

17) Make a list of goals for yourself that you hope to accomplish by a year form now or what you would like to be different in a year.  Click here

18) Create a word cloud, print it or paste it in your paper journal or on your blog. You can use Wordle or Tagxedo.  Click here

19) What have you learnt about yourself through the loss of your child? Click here

20) How do you feel different than you did before you lost your child? Click here

21) Have your priorities changed since you lost your child? Click here

22) Pick a common well-meaning quote someone has said to you. Do you believe that it's true? Why or why not?  Click here

23) What do you do when you feel like you're the only one grieving?   Click here

24) Has your faith changed?  Click here

25) What are the ways of grieving you feel society expects of you because you are a man or woman? Do you break these "rules"?

26) Which ways of grieving seem to bring you and your partner closer? Further apart?

27) What is one of your favorite memories from your child's life, even if they only lived in the womb?

28) What would you like your friends and family to do to honor and remember your child?

29) Is there anything that happens or anything you do that makes you feel most connected to your child?

30) What song has been meaningful or comforting? Why?

31) Write a list of words that describe your child.

32) If you could keep only one memory of your child, what would it be?

33) When you're having a particularly hard day, week, etc, what do you wish others would understand?

34) What are the questions people asked that you appreciate them asking?

35) How have your relationships changed since you lost your child?

36) Do you have any new fears or worries since you lost your child?

37) How has your response to grief been different from those closest to you?

38) What emotion has been the most overwhelming through your grief?

39) What unanswered questions, if any do you have?

40) What things are you still able to find joy in?

41) "Grief ambushes" are times when you experience a flood of emotion at an unexpected time. Describe some of the grief ambushes you have experienced.

42) Do you think your grief will ever end? Why.why not?

43) Although the bible shares specific details about heaven, our human understanding is limited. What do you wish you knew about heaven?

44) Identify your own ideas about how you as a man or woman are supposed to "handle" your grief. Are you following these ideas?

45) No one can imagine what it's like to lose a child until they have actually experienced it. Has anything about your grief journey been different than you imagined it would be?

46) Are you doing anything unhealthy in response to grief or are you tempted to?

47) If death is a natural process of life, why do you think so many people act uncomfortable talking about it and various aspects of grief?

48) Identify the physical, emotional, and spiritual needs you have right now.

49) Has anyone said anything that made you feel they were trying to rush you through  your grief?

50) How can you use your grief journey to help others?

51) Is anger about the loss of your child a good or bad thing?

52) How has grief impacted you physically?

53) Name a flower than reminds you of your child.


Sunday, October 26, 2014

A Little Elf Magic

I saw a post or an ad about Elf on the Shelf Elves,
and it got me thinking.
I could really make it fun for Lanie and Liam this year.
I could seriously create more Christmas magic for the kids.
Sure it's going to be a lot of work,
it already is a lot of work,
but it's so worth it!

So what did I do?
It all started on Facebook.
Our Elf,
Elfie,
created his very own Facebook page called Elfie Selfies.
What happened next?
Well the FB page didn't show enough Chrismas cheer and fun,
so "he" created a blog.
Yes a blog called Elfie Selfies.
Then posted several craft ideas.
Then I showed Lanie the blog.
Wanna guess what happened next?
Well she flipped!
Her eyes got huge as she read the title of the blog.
Then her jaw dropped to the ground.
Then her head slowly turned to look at me.
"OOOOMMMMGGGG Mom that's  my Elf!!"
She Proclaimed.
And yes she said the actual O.M.G. letters and not the what it stands for,

My little girl who will soon be 7 years old,
was extremely thrilled and glued to my side.
Needless to say,
I couldn't do anything else until she walked away.
Yes yes.
I did it.
I already see the excitement.
The thrill.
The magic.

This year is going to be GREAT!!

Lanie is already requesting that Santa send her a girl Elf,
since we have a boy Elf,
That way there are two of them to watch over both the kids,
She said if Santa grants her wish,
she will name it Selfies.
So the blog can be both their Elves posting.

Please check out the blog,
enjoy the crafts with your kids,
and give feedback.


Wednesday, September 17, 2014

Surprise Phone Call

          Despite going to bed with a headache last night,
waking up at 11:30p with a horrid migraine that had me in the fetal position in tears,
and waking up still with a headache,
I honestly thought today would be better.
I had gotten both kiddos off to school,
came home and was going to enjoy the peace and quiet.
Justin was at work so I had the house to myself,
and I was going to enjoy every minute of it,
and nurse my aching head.
I couldn't fall asleep so I took ibproffen.
Then I decided to make myself some food.
I ate in quiet and decided to do a bit of blogging.
After all...

I was proud of the post.
It was emotional and true.
Truth is important to me.
How can I give an accurate picture of what CDH does in our daily lives if I'm not truthful?
So again I spewed by guts out.
And for that I was proud.
Then my phone rang.
(That's when the morning took a turn)
Surprise (yes genuine surprise)
It was Liam's school.
They noticed he was shaky.
His arms shook when they usually didn't.
His legs were shaky as well.
His equilibrium was off causing him to fall.
His face paler than normal and marbled.
And to top that cupcake off...
He was retching.
They knew this wasn't Liam.
He'd never behaved this way.
They called the LVN to the preschool rooms to have a look at him.
They called me right after to inform me.
As soon as she said Liam was acting weird I grabbed my keys.
I was out the door before she could finish telling me everything.
I told her I'd be there in 5 minutes.
When I got there I noticed all these traits as well.
Not just that but when I picked him up,
his entire body was trembling.
'Let the good times roll' I thought to myself.
One symptom on its own would be no biggie.
All these mixed together was another story.
Mix all those with what else he had exhibited at home and I knew something was up.
He had also slept 12-13 hours last night.
Liam never sleep that long.
He had diarrhea for the last 3 days and a killer diaper rash because of it.
This morning he was breathing heavier.
He seemed better after the treatment.
He was a bit quiet this morning,
and there was that whole conversation this morning.
I'm not sure what it all adds up too,
but he sees his pediatrician tomarrow.
Good day for a check up as well.
For now all I can do is comfort him.
He's cranky today and needs his mommy and cartoons.