Todays Rundown

Just got done talking to one of the doctors on Liams case. It was a doctor we've had before, Dr Kennison. He hasn't seen Liam since October yet he remembers akk these little details about Liam that aren't in his chart. He is a good doctor but the last time we saw him he pushed just acid reflux and a week after he was off Liams case, they do rotatotions, and he remembered Liam and his case very well. He came in asked me to tell him whats been going on with Liam then said "but skip the lungs because I know all about them and thats not the big big issue here. I want to hear about the vommiting". So I told him whats been going on since last month and what the game plan with Dr  Googin was. I explained the weight loss and everything. When he tried to just push meds I went into more detail and reinforced Dr Googins plan because I refused to beat around the bush and play games. He said it did sound like thats what needed to happen but he needed to call in the GI on call, Dr Haight (Whom Dr Kennison nicknamed "Pringles Guy". My husband has nicknames Kennison "Mouth" kinda funny how Kennison and Justin are alot alike). He walked out and within 5 minutes Dr Haight walks in. Kennison just happened to see him walking down the hall and grabbed him and asked him to look at Liam. Haight agreed to do arithomiacin for Liam, I agreed but then he said "If that doesn't work we'll probably have to change out the gtube". Thats when I stopped him. I explained in extent what had been going on and Googins plan. When he saw Liam's belly he exclaimed "OMG this kid needs to gain weight" I explained that that was the problem. That as off last week Liam had lost a little over a pound and that was when he was holding down a heck of alot more food than he is now. Thats when he fully understood the situation that we couldn't play around anymore than Liam is more critical that he first assumed. He left saying he completly agreed that he was going to go talk to Kennison and a fellow GI that worked on the GI team. So now I'm waiting the final decision. The good news is we have a plan and that everyone is on board with getting Liam gaining weight for the sake of him lungs then worrying about the slow motility meds after. Meds have only worked short term as of yet so its something we can wait on. Slow motility is serious but the GJtube will sort of fix that for feeding because his feeding will go straight into Liams intestines bypassing that muscle thats causing this problem. It is important that we do get that fixed but we need to look at the whole picture and the most important thing is Liams lungs. I dont know if you all understand why its so important for Liam to gain weight. Liam is so under weight right now. It because he needs so much energry aka callories just to breathe because his lungs are working overtime. If they get him growing bigger, sorta like making him chunky than they know he has that reserve to feed his lungs. This is important because Liams right side diaphragm needs to be repaired but they cant do it untill he's strong. Messing with the diaphragm and pulling it down will ultimately mess with his lungs and then his lungs will work harder and right now he wouldn't make it through that surgery or the recouvery. Thats why our ultimate goal is bigger and stronger. After that everything else will be a breeze. I feel better knowing that yes he's in good hands here but also that the all the doctors are on the same page and following the same plan. ************************************************************************ At 3pm we took Liam to Radiology for an Upper GI to see if his fundo slipped. The test showed that the fundo was in the correct spot. Not suprising. I know the doctors are pretty much off for the day now so we probably wont have anymore test run today. I doubt if Haight or Kennison show up tomarrow saying he's going into surgery asap because thats just not how things work but stranger things have happened. I know there are other doctors that they have to confir with as well as surgeons so I doubt it happens this week at all. It's good to have some sort of a plan or atleast know they are doing something to help Liam.