RSV Positive

Liam started to not feel good on Christmas Day.

The day after Christmas he started vommiting.

He only vommited a few times.

Nothing to worry about.

He developed a cough that increasingly got worse.

Yesterday he woke up with a fever on 101.5.

Normally we'd treat it at home.

If it didnt go away after 4mls of tylanol and 4mls of motrin and 1 hour then I would have taken him to Children's ER.

But because Liam has a mediport I have no choice but to take him in as soon at his temp reached 100.5.

I packed out bags and headed to Childrens praying that it wasnt an infection in his mediport.

An infection in the mediport is a blood infection and can be very serious and deadly if not cought in time.

Blood infections are hard to treat.

When I got there, ER waiting room was packed.

I had to wait 10 minutes in line to sign in. Luckily I didnt have to wait long to be called back to the nurse who did the initial check and asked why you were there.

After I had to return to the waiting room.

Luckily because of Liam's CDH, Chronic lung disease and mediport,

we didnt have to wait not even 5 minutes before they called him back into a room.

They called him back before anyone that was infront of us.

The doctor came in almost immediately along with the nurses and asked for the back story.

Then he ordered xrays,

blood cultures,

blood work,

RSV test,

and IV fluids.

I have to sat THANK YOU MEDIPORT!

It was the easiest we've ever gotten an IV in him as well as blood drawn.

The doctor came back with the results.

Liam was positive for RSV.

The xray showed his lungs were clear and looked great.

That was amazing news.

The doctor thought it was all in his upper airway,

He said he had been hoping it was RSV over a mediport infection and thats why he ordered the RSV swap in case that was the problem.

We were then sent home.

Such a blessing it is to be able to ride out this at home.

 

 

 

What are the symptoms of RSV?

How Can I prevent RSV, cold and flus?

I posted on S4L how to prevent RSV and what the symptoms are.

 

 

 

 

Christmas Day Special Gift

The day before Christmas eve we had a special delivery of food and presents. I was utterly shocked and beside myself. At first I couldn't even talk. Then all I could say was 'Thank You' with tears in my eyes. We have the most wonderful church family ever. Even though we haven't been able to go to church because of Liam, they still stay updated on him, still pray for him. They have been such a big blessing in our lives. The kids loved the presents and Justin and I loved watching their reactions.

Thank You Sierra Baptist!!

 

 

 

 

Liam laughed at his "Liam sized" teddy bear ALL day.

He sleeps with it every night.

Cuddles close with it.

He has so much fun with the basketball, soccerball and football.

We all enjoy rolling it to each other.

He loves it when we bounce the ball.

He loves sitting with his musical owl learning toy.

He can spend hours just pressing buttons watching it light up.

 

Lanie had so much fun opening her presents.

She loves her dress up set complete with "hot heals" and a purse she calls her "pretty prettys"

She though her new clothes were "awesome"

She loves her new baby dolls and has had many tea parties with her new set.

Her most favorite and our most memorable present was the baby doll with blue eyes and blonde braids. She said "Wow! She looks just like me! Im gonna name her Lil Lanie"

I think even Liam got a bit confussed because he started pulling Lil Lanie's hair like he does his big sisters.

 

We gained memories that will last forver and its all thanks to our wonderful church. Memories we wouldnt have had without their wonderful blessings.

Still 'Thank you' just doesnt seem enough.

<3 p="p">

 

 



Christmas Eve with the Bryant's

Christmas Eve with the Bryant's is always...

Crazy, loud and hectic.

The kids roam free hopped up on sugar.

By the time dinner is ready,

theyre stuffed.

Every 5 minutes it seems someone is asking

"is it time to open presents?"

We joke and we laugh.

Listen to music.

 

Liam walked ALOT...

 

 

 

 

Ran over toes in his walker.

Grandma read Liam a Christmas story.

 

 

We opened up gifts and took a ton of pictures.

 

 

 

 

 

 

 

 

 

Liam and Grandma took a nap

 

 

There was plenty of instagramming going on too.

 

 

 

 

 

 

 

 

 

When we got home,

Lanie set out milk and cookies for Santa

And celery for his Reindeer.

Then she rushed to bed so Santa wouldnt fly over.

 

"Goodnight,

Sleep tight,

Good dreams of Santa tonight"

 

 

 

 

 

 

 

 

 

 

 

 

Christmas is 9 days away and with each day the excitement builds.

 

Our Elves are working over time making sure everyone is behaving.

 

Christmas pictures have been taken.

 

The tree decorated.

 

The present's all wrapped.

 

The stocking all hung

And the eve lights lite up

 

 

The kids have seen santa

whispered their wish list.

 

Cookies have been baked

Hand delivered to the neighbors

 

Family came to visit

 

Stories have been told

 

Laughter has filled the house

 

Cuddles have been shared

 

And Candy canes have been eaten

 

Every day is a day closer

The wait is a thrill

Cant wait to see their little faces alight

As they open their gift!

 

 

We pray you have a Merry Joyous Christmas.

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Updates:

Liam is doing good. He has had no issues with his mediport and the pain from the surgery has subsided. He is back to being a happy semi-healthy sweet little boy who is growing leaps and bounds. He is learning so quickly. He now crawls all over the house, travels along the furnature, pulls things in and out of tubs and blows kisses. Tuesday he is getting braces for his ankles to help stabalize them. The idea is that his weak ankles are preventing him from walking or standing unassisted. The hope and prayer is that these braces will allow him to start standing and walking. WALKING!! Its such an exciting concept we love it! God has done amazing things with Liam and continues to heal our sweet little lamb. We couldn't be prouder or happier of our sweet boy. Liam still isnt eating by mouth but we've been making awesome breakthroughs. He now can put food in his mouth without retching! Sometimes he likes to eat cool whip, lick on suckers or take a small bite or two of a mini reeses peanut butter cup. Thats HUGE! And today little lamb had his very first candy cane ever and HE LIKED IT!!!  Feeding thereapy was approved and his evaluation is on Jan 7th so that will help to get Liam eating like he is supposed to. One of my Christmas wishes was for Liam to eat and I couldnt ask for more! Lanie has learned to write her name and has become great at drawing. We're encouraging her by framing some of her art. She gets so excited to see her work framed and hanging on the wall. Her imagination knows no bounds. We've been so blessed. Thank you all for your prayers.

Another stay at club med

Dispite all our trying we just couldn't avoid another hospital stay. Liam has been vomiting. Three nights ago he aspirated. Our ped prescribed oral steroid and antibiotics but they didn't work. Yesterday I had to rush him to Children's hospital where he was admitted for respitory distress, possible aspiration pneumonia, and not tolerating feeds. After having IV fluids, IV antibiotics, IV steroids, and a continuos albuterol treatment over night he's feeling much better. He even ripped out his IV this morning :( they're going to try feeds. Pray fully he tolerates and this will be a short stay.