Tuesday, July 30, 2013

Jamberry Nail Party


What is Jamberry???
Jamberry nail shield are a thin layer of vinyl that you put on your nail. They last 2-3 weeks on fingers without chipping, where nail polish can chip within days. Jamberry's come in many designs and colors. You can use them on your natural nail or fake nails as well as your toe nails. Putting them on is super easy and there's no drying time.

Nail sheilds run $15 per sheet and you can get 2-3 manicures per sheet.

I have an open party right now. It end on the 5th and will help be earn the money to become a Jamberry consultant. http://meganhansen.jamberrynails.net/party/?uid=298c4e8a-d347-4152-8932-3e3d49dc3c21

There are a ton of designs being discontinued on Aug 31st so if you see any of the following that you like, ORDER THEM SOON!!




If your interested in ordering, please order from my party by clicking on the following link:





Double Ear Infection/BlendedDiet/Lanie



For once Liam is not the one sick, and for that I am very greatful. I am in the 5th week of an ear infection. Almost at the 5 1/2 week mark. When it started, my right ear clogged up. After two days, I started buying everything on the market I could find to help. NOTHING worked. After two weeks of this, and worsening symptoms, I broke down and went into Urgent Care. This was a monday.
          * the right ear was completely clogged with wax
          * the left ear was just days away from being completely clogged.
          *Both ears were flushed and mass amounts of gross wax came out (Ill spare you the details)
          *The left ear was perfect besides the wax build up.
          *The right ear drum was red and inflamed. It was infected
The infection caused me to have  trouble breathing, a cough, stuffy nose, goopy right eye and migraine. The doc prescribed a Z-Pack oral antibiotics and antibiotic eye drops.

The following monday, I was worse instead of better and yet again could no longer take the pain. I returned to Urgent Care, this time with even worse symptoms. The doc this time was very understanding and had just gone through this herself. After a quick look she said both my ears were infected from the drums to the canals and my glands were swollen in my throat. She prescribed another oral antibiotic, antiobiotic ear drops and sulfate ear drops to dry out my ears and prevent future infections. She told me that people who have chronic allergies tend to get this problem alot. I explained that yes I have chronic allergies but have never had this issue in the past. She said if this course of antibiotics doesn't work then I am to go to my primary and request to be referred to an ENT. She said she herself just went through 3 months of this and 6 courses of antibiotics before going to an ENT and didn't want me to go through this that long. She saw Liam and I explained his medical history and needs and she pushed me even harder to make sure I get this taken care off. I'm halfway through with this course of antibiotics but my ears are still hurting. Some days worse than others. I think it completely sucks and wish it were over very soon.



Liam has been started on 2 baby food bolus's a day now. Its called the Blended Diet. I push it through his tubie. Since starting it Ive noticed some significant changes:

*he sleeps better all night long. Doesn't wake up like before.
*has more energy
*is less cranky
*wants to eat by mouth more and is hungrier
*drinks water out of a sippy cup
*stool is more normal
*his color looks better
*you can visually see him putting on weight. The top part of his legs look chunky, his arms and face too. His tummy is even starting to even out. Before his stomach was super skinny and not porportioned to his body. Now its almost even.
*he tollerates feeds better

He seems to be doing great. My goal was to get him bulked up before winter because bulking his body and immune system up will help fight off bugs. Sister is starting school and will surely bring some nasty bugs home so its very important we get a head start. Most GI's do not agree with the blended diet because your putting food into the feeding tube and their worry is that it'll get clogged. I know I will have a fight on my hands when he goes back and I explain what weve been up too. Liam was on 30 cal formula for 3 weeks and still didn't gain any weight. I couldn't let another 2 weeks go by without doing something. He had already started to not tollerate bolus formula feeds. It was time to be proactive. I spent 2 years doing it their way and their way didn;t work. It was time to show them that there are other ways. Our peditrician approved it immediately. He already knew about the blended diet so when I told him what I planned to do he was all for it. There have been no negative side effects of BD.



Lanie has been doing good. She's having some issues with change. Liam turned 2, shes getting ready to start school and shes unsure of herself. It's been a problem. Shes so emotional about everything, will cry at the drop of a hat, LITERALLY. Shes says shes excited about starting school but she has stopped asking how long before she starts. Before shed ask me daily. All we can do is comfort her and tell her everything is going to be fine and that theres nothing to worry about. She'll see.

Day in and day out its the same old routine. Work with the kids, clean the house, update facebook, attend to Liam's medical needs.

Liams new FB page is http://www.facebook.com/groups/LiamMichaelBryant Its a private group so we can monitor it better.




Monday, July 29, 2013

Liam's 2nd Birthday pt 1

For Liam's birthday, we kept it on the simple side and had lunch at a resteraunt. We invited friends and family to join us. Liam had a blast seeing everyone. These are the pictures from mobile devices.


The night before, Liam got to go to Build A Bear and he ended up with SuperMonkey

Big Sister Lanie all ready for the party

Mommy ready for the party.

Liam says "YAY"

He had a blast

Super Team 

CAKE TIME!!!
Liam's first year eating his birthday cake :)
He's come so far.

Getting ready for bed.







Friday, July 12, 2013

Take 1

Playing around this morning with Liam and taking his pics. His actual 2 year pics will be taken this weekend outside.


I love this superhero diaper and batman button cover.











Tuesday, July 9, 2013

Birthday Jealousy Extinguished

With Liam's impending birthday Lanie's been a bit jealous. She's tried to pick out gifts for him that weren't really appropriate for him but great for her. While shopping yesterday I saw they had the school supplies out for cheap so I picked some up since she's starting kindergarten. Whatever I grabbed wasn't enough for her. She wanted more. We shopped through the clothes and she was upset that I could only get I pair of playground shorts for under short shorts or dresses, 1 pair of jean shorts and 1 shirt. She wanted more. I understand though. Brothers birthday means he gets presents. When we picked out a present for brother she wanted one too and was upset when I said no. Then all day yesterday she kept saying how today was her LaLaLoopsie Mermaid 's birthday. She planned out Mulala's birthday. Colored her pretty pictures for her birthday present and everything. She kept telling me today "mom Mulala's birthday party is starting come on" but I didn't have time to play. When Liam went down for a nap I decided it was time to do something for her to help with her birthday jealousy. I made Mulala a beautiful beaded necklace and of course I made one for Lanie too. Then I wrapped it. I took a York peppermint patty, stuck a candle in it and light it. When I called Lanie and Mulala to te counter, Lanies eyes light up like fireworks. She sank Mulala a special birthday song and blew out the candle. After eating the "cake" I sat them on the couch for presents. Lanie an Mulala love their presents. Now I have a happy girl and doll on my hands lol 










Saturday, July 6, 2013

Inner battle

I've been ragging an internal battle since wensday when I took Liam to his GI. At first the wanted me to completly cut him off of eating and drinking orally but after my protest they said I needed to atleast severely restrict what I have him. They're doing this because every one of his doctors and specialist thinks he's aspirating while eating. He did just get out of the hospital for aspiration pnuemonia so that didn't help our case. I told them that I would not restrict him but I would not offer him food or cuppies but if he wanted it I would give it to him. I've cought myself offering him food and cups all weekend. I can't help it. We've waiting 2 years for him to eat by mouth. I've spend the last 1 year and 9 months fighting with the feeding pump. Many many times in tears because the pump refused to work and Liam's intestines fought against it. I even broken down once and looked Liam in the eyes and asked him why he refused to eat. The feeding pump has been my worst enemy since he's gotten it. I've spend countless nights up all night trying to get it to work. I think of how Liam's pretty much slept through night for the last year and a half (not counting waking up for nightmares) and how much sleep I've lost out on during that time because I had to continue to get up to feed the pump. I can with all honesty and sincerity that I am Truely exhausted. It took 2 years but I am exhausted. I get frustrated. I've worked so hard getting him to eat by mouth the last year and 9 months and now he's finnaly eating small amounts and they want me to stop. Since wensday Liam has thrown atleast 5 fits a day for food. He's cries and screams until he gets what he's asking for. Even tries to get it off the counter himself. How am I supposed to deny a baby who is desperate and begging for food? I can't. We'd give him about 5 minutes before we would cave an give it to him. Today being day 4 we don't even deny for that long. Logically, how is he ever going to learn to swollow properly if he doesn't keep at it? He's not! The doctors at children's did this to us once before when Liam was just starting to eat. He was 6 months old and they're way to his heavy breathing and possible aspiration was to just stop feeding him. When Liam was 8 months he was flown back to UCSF where they were apauld to find out that Childrens hospitals solution was to stop feeding him. They restarted him on oral feeds. He's supposed to have a swollow study done on Monday. I am praying hard that he isn't aspirating but from what his lungs sound like after eating sometimes I think he is. I'm also praying that there's another solution besides to stop feeding him. If he's aspirating from his stomach up instead of mouth down then his surgeon will be called in again to reevaluate redoing his Nissen. We know for a fact that he is aspirating from the stomach up we just don't known if he is from the mouth down. In aggravated at the entire situation. I hate watching Liam go through all this. I am also amazed that he continues to be happy and have a great temperament despite everything. With Gods grace he will continue to be this way and just take life in stride. 

Tuesday, July 2, 2013

12 and counting

Can't believe its only 12 days away. He's come so far. I remember when we were setting goals for Liam with Brightstart and I said "as long as he's walking by age 2 I will be very happy". Liam you did it. It was the hardest goal you've had and it took lots and lots of work, sweat and IFOs but you did it buddy. You've over one so much diversity in your short little life, more than most their entire lives. I'm so proud of you and so thankful to God for being there for us all and healing you and giving is you. You are daddy and my ultimate life test buddy. We never expected the tests to be so hard or heart breaking baby boy but we've made it through the roughest points so far and will fight our way to the end. We love you Liam Michael and can't wait to celebrate your 2nd birthday and 2 year anniversary of being a CDH survivor.