Liam and I are settled into a room :) He is finnally sleeping comfortably. They changed his tylanol over to motrin even though his fever ended up breaking and they are going to continue with the motrin ever 6 hours I believe it is. Liam is on IV fluid and we are slowly starting feeds at 10mls per hour continuosly. I know its not alot at all but we have to see if he can hold that down since he's not holding hown 20 mls. They're probably going to call GI because his slow motility has turned into barely empting at all. He is negative for RSV and flu but his white blood count shows infection. They said its not enough to administer antibiotics but I have a feeling thats going to change tomarrow when his team of doctors comes in to see him. They officially declared him asthmatic. Funny how he has chronic lung disease but they didn't want to treat him as an asthmatic untill he had several stays like this in the hospital. Besides asthma runs in the family so we knew he was going to have it anyway. Theyre doing albuterol nebulized every 4hours. Sucks because Im alergic to albuteral and now that I have given 2 treatments myself while in ER Im already having issues. Why the RT had me do it is beyond me but whatever thats what mommies are for. They are giving liam a series of 5 doses of steroids for his lungs. Hopefully they will yeild some results since pulmacord (a nebulized steroid) as well as qvar (inhailer steriod) hasnt worked. Xrays looks good for Liam, even though he sounded crakly which usually indicates colapsed lung they didnt see that. They also didn't see reherniation which was a plus. Liam has been desatting all day. He kept going down to 92 and below and staying there for a few minutes at a time. He's leved off at 93/94 and is pretty much staying there most of the time and thats even while sleeping too. Just a bit ago he desatted at 88 and stayed there for a few minutes. Our nurse, the RT and nurses assistant will be comming in at midnight to take vitals, give a breathing treatment and change out Liams gtube dressing as well as put his on oxygen. This will be the first time since october (when he had gtube/fundo surgery) that he's needed oxygen. Im past getting upset at a small set back like this because I just want him better and will do anything to make him better. Hopefully Ill feel that same way once he has the nasal canula back on. They say kids that come in with "asthma" issues usually stay 2-4 days but because of his GI issues his stay might be longer. While the nurse was trying to make sure she had the right size canula she had to walk around the bed 4 times because Liam would roll the oposite side as soon as shed reach one and that was while asleep. We laughed. We have a nurse that weve had before and shes so funny. Im glad that we could start the actuall stay with a nurse we like. Hopefully things will start getting better for Liam's lungs.........Liam is now on the nasal canula. Its set at only 1 litter but he's satting back up at 99%. It looks like he just needed alittle help. I am happy that he's satting better however Liam is not. He absolutly detest the nacal canula with a fierce passion. It took me 20 minutes to calm him down though not quite sure if I calmed him down or if he just passed out on me. Either way he's back to sleep. Hopefully the poor little guy will sleep mostly through the night because he desperately needs rest. Thank you all for your prayers and good thoughs as well as your encouragement, and support. |
This isn't a fairy tale. Our lives have been forever changed by Congenital Diaphragmatic Hernia. We're just trying to find a way to make it work.
Tuesday, February 21, 2012
Liam's on his 5th Hospital Stay
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