Traumatic: 1.Emotionally disturbing or distressing The color's had faded until I saw the world in shades of grey. Eventually the Colorado started shinning through. Its been 7 1/2 months. I still have issues seeing the beauty and color of the world. Atleast I have the will to fight to see the beauty. I still need my meds and I stillhave my bad days. Life isn't perfect but my view of what perfect is has changed. I used to think perfect meant free of blemishes or defects or complications. Now that my life is so full of those things my view has changed. Now perfect is everyone healthy and happy. And healthy is a relative term. Liam home with us is healthy no matter what his issues makes life perfect. That's the perfection I am shooting for, not Liam playing football, or getting straight A's or becoming a doctor. Just having him home with us, having the whole fam together is perfect. Liam is struggling and loosing a lot of weight. The doctor is confident that he will prosper with the GJtube. Total weight loss is about 2 pounds. He handled 5mls of pedialyte, about 1teaspoon, so we decided to up it to 10mls, 2teaspoons. Pedialyte is a good start. We aren't going to try anything else until after the surgery. Its a process of 1 step forward and 2steps back but were keeping the faith every step of the way. Sent from Yahoo! Mail on Android |
This isn't a fairy tale. Our lives have been forever changed by Congenital Diaphragmatic Hernia. We're just trying to find a way to make it work.
Saturday, February 25, 2012
Day 6 Hospital Stay 5
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