Getting Liams nebulizer has been a huge ordeal. Seriously, its easier and quicker to purchase a handgun than to get a nebulizer, Im not kidding. CCS approved the nebulizer and even gave me the zar # so I could pick it up. Yesterday they refused to give it to me even after confirming this. Today I go to pick it up, I get it, get home and open the bag up. Its not the nebulizer, just the meds for the nebulizer. I called and asked why I didnt get the machine and they said its not covered by insurance. I said it was too, CCS covered it that I did all the leg work for the zar# myself. Then he tried to tell me the zar was expired. I blew up. Zars dont expire 24 hours after being issued, they have like a week of being active. I complained that the girl didnt even let me know this, that she just made me think I had his nebulizer pump when she should have said something and I would have just paid for it and fought with corperate and CCS later. He said that the only way it would be expired was because the images from the zar didnt get uploaded into their system, meaning someone didnt do their job. Wow what a suprise there..not. They guy was super rude to me and told me that I didnt have to talk to him that way and I wasnt even mean or had a raised voice. Thats when I lost it. I yelled at him. Told him they were wrong they wasted my time, my gas and my money. That I was going to coperate and complaining. I hung up and Justin went down to pick it up. The manager, after my husband asked for her several times, finnaly shows up. He asked for paper work showing when the zar was expired and what zar number they had. The paperwork they have said his zar was good from 1/1 to 1/6. We hadnt even had a zar then. We hadnt had a zar until yesterday. He explains what was going on then the manager piped in and said "You cant possible know whats going on since I work here and dont even know whats going on". Justin was pissed, he told her "Then thats your the problem. Your the manager, we've been calling and comming in all week fighting with you guys over this and not once have you heard anything". So he's super mad, the manager is frustrated. She actually tried to just walk away while Justin was talking to her because she just didnt want to deal with it. Justin ofcourse kept talking. He only raised his voice so others could hear until she turned back around to finish the conversation. He asked her is she was frustrated. When she said yes, he said "yea well trying having to do this every day since sunday and see how you feel". After demanding all the paper work we need to fight this and them handing it over he leaves. He brings home the paper work and low and behold the fist thing I check is the zar number. The zar number they enetered into their computer is 1 number off from the one CCS gave me. I will be contacting CCS as well as corperate tomarrow as well as begin my search for a lawyer. Im going to sue Kaweah Delta for not doing an ultrasound when I went in in labor like 7 times when its protocal to do one the second you go into premature labor. If they had they would have seen that my uterous was split open and they would have seen Liams CDH. Then Im going to see if we have a case against walgreens for going against HIPPA as well as not doing their jobs with the nebulizer. Im so sick of being pushed around and stepped on. It wasnt even the point that we had to pay cash for the nebulizer. The huge problem was they didnt even bill CCS for it at all untill I made the call to CCS on wensday. The only reason we were able to pay for it today was because we just got some funds in this morning. I feel like such an ass. A very nice family from our church congrigation goes and offers to pay for Liams nebulizer because they felt like God was putting that in their hearts and here I go and deny it thinking CCs would be fixed and Id have no problems picking it up today. I feel horrible. I dont like to take help or money unless we absolutly need it and I didnt feel we did. Thank God those other funds came in we werent expecting. I know God provides, he has provided for us so much. Its just frustrating. Justin and I agreed that we arent dealing with pharmacys anymore, we'll have the docs get the pharmacys to deliver because the stress of this is too much for any of us. Justin came home, looked at me and said "I know why people go postal now". If it hadnt been just a horrible situation I would have laughed. I asked him how he thought I felt when thats what I have to go through with absilutely everything for Liam. He was lucky, he only got a small little taste of what Ive had to go through and now he knows why my stress level is so high. I just have to say THANK GOD THANK GOD THANK GOD we have the nebulizer now! I don't care that we had to pay for it, God provided us the funds to do so. I'm just glad that I can give my little man his breathing treatments now so he can get better. I gave him his first at home breathing treatment at 10pm, after the half hour it took me to figure out how to put together the make and make it work lol. Liam didn't mind it too much. He spent most the time holding onto the ducky mask, which we now call ducky momo. He even held it on himself for a minute in the right spot. What a helper. Lanie decided she wanted in on the action and helped to hold it too. Towards the end of the treatment Liam seemed to relax, finnaly. He stretched out his legs and put his arm above his head (its a Bryant thing passed on by the dads), and just chilled. His breathing wasn't dramatically changed, but we know it takes a day before the breathing calms down. However he was comfortable, something he hasnt been in 2 weeks now, and now he is sleeping soundly. Again thank God! I am going to try to relax this weekend and get rid of all this stress. I need to find a way to get rid of this anger at the world, at CDH does I can go back to not blowing up at people. I need to find a way to stay calm and composed even when things like this happen. You know I cant wait for the day when I have a mundaine update to share. I much more enjoyed the days when I was posting about Liam's tiny progresses instead of my fights with people. Im going to make an effort to change that, as well as my thinking.
Liam holding his duky momo during treatment, he had to move the mask to smile at me lol
He's so handsy lol. He held it the entire time lol What a big boy
God knows & forgives You . Haven only knows You have had a Long road . & God has tried you & family too . So I Thank The Good Lord for you & what a great Mommy & wife you have Been . Right here For you & Most of all God hears your crys Befor you say one thing . sending prayers to u
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