The positives #3 Our great weekend

Its been a pretty great weekend for us. The kids got to see their Uncle, Tia and cousins. Tia got to watch Liam all by herself for the first time while I ran to the store. She was so happy. Lanie got to play with her friend she met at the bowling alley last weekend, a 5 year old boy names Caleb with blonde air and blue eyes lol. Such a polite kid! Today we had family time. The weather was so nice, we strapped Liam in the stroller and went outside for some fresh air. He got to watch us shoot our bows and listen to the birds. The fresh air did us all good. Liam's breathing nebulizer treatments seem to be working well for him. Unfortunately I have found out that I am allergic to the albuterol that he's using and now have a sinus infections. Ill suffer for the cause :)

Miss Lanie wore her camo shirt and mosy oak boots on saturday and thought she was cool stuff


I came back from the store saturday to find my son sleeping soundly. It was so precious


The arms over the head is a Bryant gene. We call it the paternity test lol


This little guy here is my best buddy. He loves me so much cause Im the bestest Auntue in the world....they call me the cat whisperer. This is Boots


Miss Lanie vegged out watching cartoons


Yes he's a Marilyn Fan


My handsome man


He thinks its funny when he poops and we have to change his diaper. He was laughing at his cousin Kayla


Cousin Kayla teaching Liam how to text. Thanks to predictive text he spelled 'xbox' and a few other words


All smiles for Tia


The ending to our saturday :)


Goodmorning handson boy! Its sunday!!! I love this sleeper. Its vintage and one of the few vintage outfits he has.


"Mom, I jsut woke up!"


Hanging out listening to his big sister




Lanie playing music for Liam


Huge Smiles


trying to make eachother laugh first




Lanie's magic smile....ofcourse I was tickling her to get it


Lanie in a melt down because she hurt her hand


Fresh Air and watching us shoot bows. He loved listening to the birds


Lanie and Daddy retrieving the arrows


And to finish it off, a video of Liam blowing kisses at Jenny and doing a very weird thing with his tongue

The Positives #2 Great Day With The Kids

Liam's breathing treatments are going good so far. He helps hold the mask on. Liam is more comfortable today than he has been. He been able to take naps and just hang out in his bouncer with his toys. It already an improvement. He still has cranky moments of course, that’s not going to change over night, but the moments are far and few between.

Daddy helped give Liam's treatment this morning


And Liam helped Daddy :)


Quack Quack Liam






Look at that hair! Daddy tried to fix it but made it worse




Liam and Mommy taking a cat nap


One minute aslep


The next wide awake :)


And smiling


Watching Daddy play Deadliest Catch on xbox


Listen carefully at his noises, thats him sucking his paci..BEWARE theres a buzzing noise at the begining from a incomming text so dont play it too loud!


Liam playing soccer


Lanie's smile will melt your heart. I think she know it too.


Laughter is is they best medicine and Lanie's helps heal my soul.


She's getting so big and independant, if I cant keep her small forever then independant is good.






Today she played Angry Birds on my computer all by herself and changed her dvd all by herself. Its hard for me to let go control because it feels like I missed so much while I was up at UCSF away from her. Her being so independent is a sign that she is adjusting well and has overcome what has happened but Liam and our family being split apart. Im so proud of her. She has magical hugs that seem to make everything better, that’s what we tell her.

We ended the day with Lanie “reading” storied to Liam before he was put to bed. The three of us were laying on the floor calm and relaxed. Lanie would finish one book then swap it out for another. It was such a sweet moment.

The Positives #1 Liam's Last Hospital Stay

I've decided to do a series of post that focus on the positives. I've been posting so many negative thing lately that I feel this will be good, ezpecially for me. It'll give me a chance to think about all the good things that make me smile or make me laugh and refocus my brain to set aside the negatives and not be so bothered or ruled by them. I'm going to start with Liam's last appointments at Valley Childrens:

1) Xrays were still clear
2) We cought Liam's condition very early so it made for a short stay
3) We loved our hoapitalist, she was very truthfull with us and discussed game plans
4) We got to see our favorite PCT Lydia again.
5) We were saved from eating the nasty hospital food because we packed campbells soup cups and other goodies. We were smart lol
6) Genetics ordered an entire genetic panel to make sure Liam doesn't have anymore genetic issues.

Lanie and Justin Kept themselves entertained during Pulmonalogy


Liam hanging out during Genetics


Liam hanging out during Pulmonalogy, the thinks he so cool in his diaper with his foot in his mouth :)


While waiting for his room Liam decided he's pull on daddy's facial hair


Lanie wasn't allowed into the patient room areas because she was under 12 years old. Daddy had to keep her entertained while I got Liam settled in his room. Lanie and Daddy went for a walk and the next thing I know theres a knock on Liams window.


Lanie looking at her brother and waving


After Liam was settled, I walked out into the waiting area to find Lanie passed out asleep with the flowers she picked for me. Poor baby was so tired she didn't even fight it..which was good for everyone lol


We had to leave Liam at the hospital so that we could go pack and drop Lanie off with family since we were expecting a hospital stay, Liam slept the entire time we were gone. This was the sweet face we came back to at the hospital


Admist all the gloom and negative of being stuck at a hospital, were many positive moments for us. It feels good to be ablet to look back at that and recognize those moments that we missed while we were there.

One last fight with Walgreens, but we got it!

Getting Liams nebulizer has been a huge ordeal. Seriously, its easier and quicker to purchase a handgun than to get a nebulizer, Im not kidding. CCS approved the nebulizer and even gave me the zar # so I could pick it up. Yesterday they refused to give it to me even after confirming this. Today I go to pick it up, I get it, get home and open the bag up. Its not the nebulizer, just the meds for the nebulizer. I called and asked why I didnt get the machine and they said its not covered by insurance. I said it was too, CCS covered it that I did all the leg work for the zar# myself. Then he tried to tell me the zar was expired. I blew up. Zars dont expire 24 hours after being issued, they have like a week of being active. I complained that the girl didnt even let me know this, that she just made me think I had his nebulizer pump when she should have said something and I would have just paid for it and fought with corperate and CCS later. He said that the only way it would be expired was because the images from the zar didnt get uploaded into their system, meaning someone didnt do their job. Wow what a suprise there..not. They guy was super rude to me and told me that I didnt have to talk to him that way and I wasnt even mean or had a raised voice. Thats when I lost it. I yelled at him. Told him they were wrong they wasted my time, my gas and my money. That I was going to coperate and complaining. I hung up and Justin went down to pick it up. The manager, after my husband asked for her several times, finnaly shows up. He asked for paper work showing when the zar was expired and what zar number they had. The paperwork they have said his zar was good from 1/1 to 1/6. We hadnt even had a zar then. We hadnt had a zar until yesterday. He explains what was going on then the manager piped in and said "You cant possible know whats going on since I work here and dont even know whats going on". Justin was pissed, he told her "Then thats your the problem. Your the manager, we've been calling and comming in all week fighting with you guys over this and not once have you heard anything". So he's super mad, the manager is frustrated. She actually tried to just walk away while Justin was talking to her because she just didnt want to deal with it. Justin ofcourse kept talking. He only raised his voice so others could hear until she turned back around to finish the conversation. He asked her is she was frustrated. When she said yes, he said "yea well trying having to do this every day since sunday and see how you feel". After demanding all the paper work we need to fight this and them handing it over he leaves. He brings home the paper work and low and behold the fist thing I check is the zar number. The zar number they enetered into their computer is 1 number off from the one CCS gave me. I will be contacting CCS as well as corperate tomarrow as well as begin my search for a lawyer. Im going to sue Kaweah Delta for not doing an ultrasound when I went in in labor like 7 times when its protocal to do one the second you go into premature labor. If they had they would have seen that my uterous was split open and they would have seen Liams CDH. Then Im going to see if we have a case against walgreens for going against HIPPA as well as not doing their jobs with the nebulizer. Im so sick of being pushed around and stepped on. It wasnt even the point that we had to pay cash for the nebulizer. The huge problem was they didnt even bill CCS for it at all untill I made the call to CCS on wensday. The only reason we were able to pay for it today was because we just got some funds in this morning. I feel like such an ass. A very nice family from our church congrigation goes and offers to pay for Liams nebulizer because they felt like God was putting that in their hearts and here I go and deny it thinking CCs would be fixed and Id have no problems picking it up today. I feel horrible. I dont like to take help or money unless we absolutly need it and I didnt feel we did. Thank God those other funds came in we werent expecting. I know God provides, he has provided for us so much. Its just frustrating. Justin and I agreed that we arent dealing with pharmacys anymore, we'll have the docs get the pharmacys to deliver because the stress of this is too much for any of us. Justin came home, looked at me and said "I know why people go postal now". If it hadnt been just a horrible situation I would have laughed. I asked him how he thought I felt when thats what I have to go through with absilutely everything for Liam. He was lucky, he only got a small little taste of what Ive had to go through and now he knows why my stress level is so high. I just have to say THANK GOD THANK GOD THANK GOD we have the nebulizer now! I don't care that we had to pay for it, God provided us the funds to do so. I'm just glad that I can give my little man his breathing treatments now so he can get better. I gave him his first at home breathing treatment at 10pm, after the half hour it took me to figure out how to put together the make and make it work lol. Liam didn't mind it too much. He spent most the time holding onto the ducky mask, which we now call ducky momo. He even held it on himself for a minute in the right spot. What a helper. Lanie decided she wanted in on the action and helped to hold it too. Towards the end of the treatment Liam seemed to relax, finnaly. He stretched out his legs and put his arm above his head (its a Bryant thing passed on by the dads), and just chilled. His breathing wasn't dramatically changed, but we know it takes a day before the breathing calms down. However he was comfortable, something he hasnt been in 2 weeks now, and now he is sleeping soundly. Again thank God! I am going to try to relax this weekend and get rid of all this stress. I need to find a way to get rid of this anger at the world, at CDH does I can go back to not blowing up at people. I need to find a way to stay calm and composed even when things like this happen. You know I cant wait for the day when I have a mundaine update to share. I much more enjoyed the days when I was posting about Liam's tiny progresses instead of my fights with people. Im going to make an effort to change that, as well as my thinking.

Liam holding his duky momo during treatment, he had to move the mask to smile at me lol


He's so handsy lol. He held it the entire time lol What a big boy