New Traditions

We started a new Christmas tradition this year. Elf on the shelf has swiftly becoming the kid's funnest part of the day. Every morning Lanie wakes up and immediately goes on the search for Elfie, our EOTS. Even funnier are the selfies Elfie has started taking on my ipod. The kids think its hilarious and I just love seeing them so happy. So watch out for more of Elfie's selfies!

Mommy Update

I'm a few days late on updating about my medical issues.

The very last diet soda I drank

was on the 19th.

Within 36 hours of no diet soda,

no artificial sweeteners of any kind,

I was able to not only walk,

but run with minimal pain.

When I went to the doctor on Friday

November 23rd

I found out my blood work came back great.

I started explaining  to the doctor about the article I had read,

http://mommyconfessionalinmyshoes.blogspot.com/2013/11/pain-pain-go-away.html

and he said he had just read that same article.

So after explaining how the pain had gotten so bad,

then better so quickly after stopping diet pepsi,

he too agreed that I had Aspartame poisoning.

With every passing day

I feel better.

I am still not quiet 100%

but I'm not far from it.

I am still in shock

that I could do such a horrible thing to myself.

I knew that what you put into your body could harm or help you,

but I never gave it any thought.

I thought I was just cutting back calories

and trying to loose weight

to be a better me.

Instead I was cutting back calories,

and potentially killing myself.

If I hadn't of read that article,

my condition would have worsened

until one day Id be dead.

But thankfully

I have a great support system of

friends and family who care

so when they saw the article they thought of me.

I will never touch another diet soda again,

nor anything with artificial sweetener.

I started reading labels

and you'd be shocked how many products you use daily,

that contain some form or another.

If its sweetened with anything but

SUGAR

its artificial and you should try to stay away from it.

I went to buy gum today and couldn't because just about every brand

uses artificial sweetener.

If the package says

"no cal"

"zero cal"

Its made with artificial sweetener.

Splenda

Sweet N Low

are both artificial sweeteners.

When it comes down to it,

products made with sugar

even though they have more calories

are actually healthier for you.

And the sugar is easier for your body to burn than

the fake stuff.

So what is Aspartame Poisoning?
Aspartame is artificial sweetener's
It's found in diet soda,
sugar free candy,
gum,
some coffee,
even yogurt.
FDA originally approved it for use in dry food goods.
Aspartame poisoning can affect you phycologicaly,
nurologically,
and physically.
 Among these symptoms are dizziness, numbness in the limbs, severe tremors, facial pain, seizures, headaches or migraines, confusion, fatigue, slurred speech and hyperactivity.
According to author Karen Hanrahan, a wellness educator and nutrition consultant, aspartame poisoning may cause nausea, vertigo, skin lesions, ringing in the ears, loss of taste, muscular and joint pain, irregular menstrual cycle, heart attack symptoms and menstrual cramps. Physically you may also experience diarrhea, abdominal pain, painful swallowing, asthma-like symptoms, thinning hair, hair loss, burning during urination, excessive thirst, fluid retention, high blood pressure, allergic reactions in the mouth, weight gain or loss, leg swelling and bloating.

Family Ties

Family is always something that meant alot to me.

Sometime I haven't had much of.

Until recently that is.

When I married my husband,

I gained his family.

Supportive,

Loving,

And caring.

I also had "my" family.

Which consisted of non-blood related family members.

Those that even though we don't have the same blood coursing through us,

or share the same genetics,

meant more to me than any of the blood relatives I know.

Still,

I wondered about the missing link.

I've searched for years and years for my dad's side of the family.

Honestly at the least,

I searched for 10 years without being able to find a single

blood related relative.

I searched social media sites,

ancestry site to no avail.

Then one day,

just days after Facebook demolished the

'Can't search for me' privacy option,

I get a major shock.

A message on Facebook

from my dad's mom.

MY GRANDMOTHER!

I jumped for joy.

Finally,

the missing link,

isn't missing!!

I have a whole slue of blood related family now.

I can't even begin,

nor will I try,

so explain the extent of my new found family.

Daily I learn more about them

and they about me.

Daily do I feel their love reach through the computer,

and phone to lift me up.

In the last few days,

my heart has grown enormously

to encompass my new found family.

They were my missing link,

and I was theirs.

In getting to know them,

I am getting to know more about  myself.

What physical and personality traits

came from them.

I am so happy that the circle is finally complete.

And that now we are back together again,

like we are meant to be.

I feel like I have everything in the world I could ever want.

Pain Pain Go Away

And unlike the nursery rhyme I Don't want it to come back another day.

I have no gotten better,

infact worse.

My whole body has been in pain since Saturday morning.

Friday couldn't come faster.

I am really anxious for those test results.

And now that a friend on FB has shared an article with me,

I am even more anxious.

This article could have potentially saved my life.

The article is about a woman who had Aspartame poisoning,

only they didn't know that.

Her doctors thought she had MS.

Here's part of the article and know that I have every symptom listed:

Systemic lupus has become almost as rampant as multiple sclerosis, especially with Diet Coke and Diet Pepsi drinkers. The victim usually does not know that the Aspartame is the culprit. He or she continues it’s use; irritating the lupus to such a degree that it may become a life-threatening condition. We have seen patients with systemic lupus become asymptotic, once taken off diet sodas.

In cases of those diagnosed with Multiple Sclerosis, most of the symptoms disappear. We’ve seen many cases where vision loss returned and hearing loss improved markedly.

This also applies to cases of tinnitus and fibromyalgia. During a lecture, I said, ‘If you are using ASPARTAME (Nutra Sweet, Equal, Spoonful, etc) and you suffer from fibromyalgia symptoms, spasms, shooting, pains, numbness in your legs,
Cramps,
Vertigo,
Dizziness,
Headaches,
Tinnitus,
Joint pain,
Unexplainable depression, anxiety attacks, slurred speech, blurred vision, or memory loss you probably have ASPARTAME poisoning!

You can bet Ill be asking the doctor friday about this.

As well as letting him know that,

up until today,

I drank DIET PEPSI

like it was water.

I needed my diet pepsi like an alcoholic needs his drink.

Up until today that is.

I refuse to drink another diet soda.

It's just not worth it.

Within 32 hours this woman who was in a wheelchair,

was able to walk again.

All because she stopped drinking diet soda.

She also reported that her muscle spasms went away.

No she wasn't 100%,

but it takes time.

She was also off all her medication

except one for the poisoning.

I know everything is in God's hands,

but I do hope that I will be able to report that my symptoms have started to go away.

The last diet soda I drank was last night,

so I'm almost 24 hours to her 32 hour mark of feeling better.

Please say a pray ;)

You can read the article for yourself at:

http://rhondagessner.wordpress.com/2013/09/02/a-killer-in-your-fridge-sweet-poison-a-must-read/

Joyful and Triumphant

2013 has been a

Joyful & Triumphant

year for Liam...

And the entire family.

Liam has made so much progress

and has grown so much.

God has been VERY busy

healing our Little Lamb.

We started out the year

with Liam struggling to walk.

He couldn't walk on his own,

let alone stand without assistance.

Still he was happy,

and playful.

The year started out rough.

Liam wanted to crawl everywhere,

but he was hooked to the feeding pump

20 hours per day.

Liam was approved for Physical Therapy.

His PT realized he has low muscle tone in his ankles.

She figured that was the reason he couldn't walk at age 1 1/2.

IFO's were recommended.

And thanks to a generous donation

from a prayer warrior,

Liam was able to get his IFO's.

Still is was a struggle.

We did leg strengthening exersizes daily.

He soon was able to walk holding onto things.

He climbed before he could walk.

Even learned to climb out of the walker

making is unsafe to use.

Which in turn made it very hard

to keep him from pulling out his feeding tube.

Liam wanted to walk so bad

and was so determined

that he even started spider walking. 

He'd stand on all fours,

and his head,

and "walk" across the room.

Then one day out of the blue

we were at the doctors office for a routine visit

when Liam stands up

using the wall to do so,

then starts walking down the hallway.

I sat there shocked.

Then I remembered to grab the camera.

I videoed Liam walking all the way to the back.

It was amazing!

This video was taken the day he decided

he wanted to walk.

May 28th 2013

http://www.youtube.com/watch?v=FKGn2iRiUmQ&feature=youtu.be

It's so hard to believe

that its only been 6 months.

I remember swooping him up into a big hug

right after I videoed him,

then I cried.

I cried again on the way home.

And as I sat here now watching the video,

I am teary eyed.

Its AMAZING!

The same day he had Bright Start and PT.

They were shocked as I was.

Click to review the blog post:

http://mommyconfessionalinmyshoes.blogspot.com/2013/05/unexpected-surprise.html

Liam had several hospital stays

and setbacks throughout the year.

When he finally started eating we were thrilled.

Unfortunately every time he got sick

he would stop eating

and it would take months to get him to start again.

This past year we ditched the GJ tube,

and replaced it with an AMT mini ballonless button.

Hes gone from 20 hour continuos feeds,

to 12 cont night feeds,

and 3 bolus feeds during the day.

We also added Blended diet feeds during the day.

When we started that,

he started eating more,

drinking,

and gaining weight.

He's still super tiny for his age

but growing great.

He's taller and weighs more

than I did at his age.

So this momma isnt worried

about his tiny size as long as he continues to grow.

Liquids were really hard.

For awhile he would only drink

out of a honey bear.

Then it was a baby bottle.

He finally settled on a specific sippy cup.

He's been drinking out of the same kind for about 6 months now.

He's eating now,

but small amount at a time.

He loved dorritos,

french fries,

chicken nuggets,

almost all meats,

pizza,

spagetti,

beef jerky and so on.

We're still dealing with texture issues.

Oral and environmental.

He will let you brush his teeth now,

but not with tooth paste.

He gags and vomits if you do.

We're still having issues with his feet

and he's been reffered to a specialist,

who has yet to call.

Probably because were still waiting on isurance approval.

He can walk without his IFO's now,

but his ankles are so bad they practically touch the ground.

(Theyve gotten worse since this pic)

Verbally,

Liam is improving daily as of this last month.

We were getting worried about him.

His words still arent very clear

 but we understand them.

He speaks some sentences

and copies everyone.

And we made progress in spreading CDH Awareness!!

I sent in a letter to our Mayor.

After reading she declared CDH awareness week in March every year!

Unfortunately I couldn't be present to accept the reward.

But Liam's Grandma was.

Its been an amazing year for our amazing little boy.

Hes come so far!

As you can see

it's been a triumphant and joyous year for us.

What will next year bring?

Exhausted

Everyday I am faced with a new hill or mountain to overcome. I feel I've done a great job. From turning cheek at rude comments to working with a hurt foot/hip without complaint. We have a scan per hour goal we have to reach and daily I'm taken off register to do other tasks. I know my numbers are going down and it's painful to walk around and complete these task yet I do them without complaint and I do them well. To the point I'm getting complimented on how I go further and do more than anyone else.  My foot however is slowing me down. It's painful. Today it not only hurts but I burning up. Thats not a good sign so tomarrow I will be going to the doctor to find out what's going on. I've got to get it taken care of. When in in pain I'm tired. 

2:07pm

Only 2 hours into a 9 hour shift and I'm in so much pain. I hate my foot right now and just wish it would stop hurting. I've haven't complained or winced. The only thing giving away that I'm in pain is my limp. My foot is tingling and feels swollen and the back part of my heel is throbbing pain. Only 2 more hours till my hour lunch then I can rest it. On break now, thank God and I have my foot propped up. Unfortunately my allergies are also playing haywire and causing a slight sore throat and eat ache. My foot hurts so bad it overpowers the horrible mental cramps. 

On the plus side Liam gave me a huge hug and kiss before leaving with daddy to go get Lanie from school. He's such a lover boy. 

Lanie ended up in bed with us around 4am. She said she had a nightmare. She snuggled in tight between us then fell fast asleep. She was so tired this morning she didn't want to get up. I didn't either and ended up sleeping until 10am. I don't get any time with the kids today but I made up for that yesterday when Lanie and I made felt flowers. She's a rockstar at making the rosettes. She told me I should sell them in my online store. I think I will then give her the money for her piggy bank. 

4:40pm 

I hurt so bad in dizzy. I also think I tore something. I'm taking Tylenol every 2 hours and nothing. I've ha my foot elevated all lunch break and it still hurts. The heel worse. I definitely made it worse. I wish I could just go home and sleep but I'm too hard headed and determined to never miss work to do what probably needs to be done. I'm praying its not too serious but it feels like a serious injury. 

Work Work Work

A mommies job is never done, weather at home or on the job, especially with a new addition to our home!

Meet Willie, our Duck Dynasty lovin Boxer puppy. 

Willie was born 8/06/13 and is the sweetest, calmest puppy I have ever met. He's not mine, he's Justin's but by how much I spoil him you'd think he was mine. I claim him anyhow. 

Our Willie boy dressed to resemble Duck Dynasty's Willie complete with stuffed duck. I also bought him a camp bandana to wear around him neck as well as a red Bow tie for Christmas pictures. He's an early Christmas present for all of us. 

Haro and Willie get along great. Willie loves playing with him and Haro enjoys having a playmate. 

More importantly is he doesn't jump, Liam's not scared of him and.....

Liam an Willie are best friends. Willie is great therapy for Liam. We're teaching him how to love the puppy and take care of him. Liam loves to pet him. At first the texture of Willies fur was weird for him but everyday that goes by he handles it better. (Liam still has texture issues but he's been doing great).

Miss Lanie loves Willie so much she wanted him to sleep in her room. We said no but did make a bed in the laundry room for him since he's too small to be outside. 

Everyone loves Willie boy. 

I've officially put my foot down and said "no more!"  We've way too many pets. This momma is at her limit. 

2 dogs (Haro & Willie)

1 rabbit (Droopie)

1 cat (Jack)

1 beta (Swimmie)

Work is going good. It's keeping me busy, has helped break my depression streak. I enjoy working. Justin has done great taking care I the kids. Liam is getting fat cheeks thanks to Justin. My job has paid for the kids Christmas presents. I'm proud to say that they are done! (A few stocking stuffers from Santa is all) I feel good that I was able to provide that for them. Everytime I think "I'm too tired to go to work" I think of them and it gets me through. 

Day 5 I am thankful for

Day 5: I am thankful that Liam is eating so much by mouth. He was a non stop eating machine today. 

I'm pretty sure Liam is thankful for Doritos today, and Lanie is thankful for pizza lunchables. 

Took Liam to the pedi for his first shot of synagis this morning. He weighs 22lbs and 7oz and is 34 1/2" tall. I looked at my baby book today and he weight more and is taller than I was when I was age 3 and he's only 2. Good job little man!!

Day:4 I am thankful for being able to work again. 

Day 3: I am thankful for being able to spent time with family. 

Day 2: I am thankful for both my children. 

Day 1: I am thankful that Liam survived CDH and that he blesses the world with his smiles and laughter everyday. I am thankful our family survived CDH. 

Memories and Flowers

I was  getting ready to post an update when a blog post caught my eye. Grace’s journey with CDH posted on their blog about being asked “What memory do you have of your child that stands out for you the most. It may be a positive or negative memory. When you think of your child what is the first memory that comes to your mind?”

When I think of my first memory of Lanie, I think of the day she was born. Justin and I were in the OR because I was having a C-Section. Suddenly I hear her sweet cry and I start crying. They bring her over to us all wrapped up in a blanket and wearing a beanie to keep her head warm. They handed her over to me to hold and look at in the midst of finishing the C-Section. She immediately looked at me and stopped crying, then closed her eyes and fell asleep. My arms started to feel weak and I think the anesthesiologist realized this as well because we both asked Justin to take her before I came too weak and dropped her. He happily held her close and smiled at her with pride. Our first family picture was taken in the OR with Lanie in my arms and Justin smiling proudly at the camera. Our first day together was amazing and I feel in perfect sync with her needs and stepping into the mommy role.

My first memory of Liam is tramatic to say the least. When I finally got to lay eyes on his at 8 hours old he was sedated and hooked to so many tubes. They were getting ready to transport him to UCSF, 4 hours away. That memory will forever be ingrained in my mind and has changed me forever. Liam’s fight for life taught me to live each day to the most and to enjoy everything I do. It taught me that I can make a difference sharing our story and spreading awareness, something I will do for the rest of my life because of him.

My days are extremely busy. I’ve been working so much lately, and when I’m home I’m busy spending time with my kids and husband trying to make as many memories as I can before they’ve outgrown giggle, and being chased by the tickle monster. Before they trade in books and cuddles for cell phones and ipods. Time doesn’t stand still and neither do my precious babies.

I love working. It’s been so much fun getting out and meeting new people and trying to raise to the goals others have set for me. Coming home to two smiling children greeting me at the door with hugs, kisses, giggles and stories about their day has been amazing. Granted, I get even less sleep than I did before now that I can’t make it up during the day, but coming home to their energy is almost like an energy drink.

Liam has been eating so much by mouth! He gets all his tube feeds but still wants to eat and eat and eat. Tonight he ate probably half a cup of meat in spaghetti sauce for dinner alone. 30 min prior to that he ate ¼ cup of meat loaf from last nights dinner. That’s not even breakfast and lunch! Tonight he kept making whinning noises while I ate even though I was giving him bites so I told him to use his words. So he decided to say “Give me a bite”. WOWZA! 

Tonight  we read Robin Hood and Liam decided he wasn’t interested so he left me and Lanie hanging as we walked away to play. It was pretty funny.

Miss Lanie has shown a lot of creativeness. Shes officially crafty like her momma. She watched me make 1 felt rosette flower and asked if she could make one too. I cut out the material and 2 minutes later there sat a perfect rosette in her little hand! I just staired at her hand in utter shock. After I took and and glued it so it wouldn’t unravel, I sat it next to the one I made. Guess whose turned out better? LANIE’S!! She is now my little rosette princess! She ended up making her very own headband filled with rosettes in different colors. All I did was glue everything because she can’t handle a hot glue gun. She wants to learn how I make my other flowers now so next day off Lanie will be getting another lesson in flowers. 

Cartoons And Snuggles

Today was my day off.

I enjoyed shopping with my boys,

Justin and Liam,

while Lanie was at school.

Lanie,

Liam,

and I snuggled up to watch cartoons this afternoon.

We watched

'The Smurfs The Legend of SmurfyHallow'

It was short,

but Liam sat through the whole thing.

This evening we all went for a walk as a family.

It was fun to get out for no particular reason but to walk.

We actually miss SF for that reason.

Pumpkin Theif

October 16th 2013

(Playing catch up here)

We woke up to one of the kid's pumkin's being stolen.

Lanie noticed it as we were leaving to take her to school.

She was so broken hearted and upset that it broke out hearts.

Both Lanie and Liam's pumpkins were pretty big.

Lanie had decorated hers the day we brought it home.

Liam's however hadn't been decorative yet,

so they took it.

In fact just the night before,

I dug out the decoration for his pumpkin to put on.

There were bicycle tire tracks in the yard.

We found the broken off stem in the rock bed,

and pumpkin residue on the bricks from where the pumpkin fell

when they picked it up by the stem.

Seriously,

WHO STEALS A KID'S PUMPKIN?!

WHO RIDES A BIKE TO STEAL A PUMPKIN?!

Anyhow.

After we dropped Lanie off at school,

we went to replace the stolen pumpkin.

We wanted her to come home and see it and be happy again.

She is so protective of Liam.

Atleast we're convincing ourselves of that

after her outpouring of emotions.

After replacing the stolen pumpkin with one slightly bigger,

we went on search for a HUGE fairy tale pumpkin.

Not only could we NOT find any fairy tale pumpkins,

but we couldn't find any HUGE pumpkins.

After giving up the search

and being irritated that someone would steal a pumpkin

and seeing Lanie so upset,

we had to come up with a way to keep this from happening again.

Justin drilled holes through the stems,

then chained them up to the post on the porch.

The stems hardened around the metal chain stuff

making it extremely to take them.

The only way would be to break off the stems.

We understand that if they really want to steal,

they will find a way.

But this is a detourant.

We noticed the neighborhood hoodlums heading up towards our porch

and pumpkins when they thought we weren't looking.

They saw the pumpkins locked up,

then turned around and walked away almost annoyed.

So far so good.

Check out what we did:

Halloween card 1

Just that time of year

You know when fall hits and you say,

"What happened to summer?"

Yea that's where I'm at.

We didn't get in near as much as I wanted to this last summer.

Since June Liam has had

Pneumonia,

Infection of his G-tube site 3 times,

and 2 colds/virus's.

All of this and:

1. It wasn't even the scary cold/flu/RSV season (aka quarantine season)

2. And only resulted in one hospital admittance!

The fact that he was sick that many times and was only in the hospital once

is absolutely AMAZING!

The fact that he was sick that many times

and it wasn't even quarantine season is scary.

To think that just a few months ago

an infection of his G-tube site would land him in the hospital,

a year ago a cold would land him in the hospital,

and now he's at home fighting all this on his own.

There is reason to have faith in the future

that things will continue to improve,

that one year soon,

Liam just might not have to be quantantined all winter long.

But sadly he does,

and the season is upon us.

The paperwork for synagis,

to help fight RSV,

was submitted a month ago.

Two weeks ago they were informed that pediatrician referral wasn't enough,

that insurance required the pulmonologist to make a referral on Liam's behalf.

Technically he fits the criteria.

Has chronic lung disease,

asthma,

and frequently requires oxygen.

BUT now the ball is in pulms court

to be bounced back to insurance.

That was two weeks ago.

It's going to be a scary year if they  don't approve them.

Liam just "got over" an infection of his G-tube site.

We just stopped the antibiotics on that this last Tuesday.

His stoma looks great now,

but he's still not tolerating all his feeds.

He's doing great with his day time bolus's

but not so good with his continuous night feed.

Not sure if he caught a virus or not.

He still seems to be gaining weight

and growing taller.

But now here we are,

at the time of year we start quarantine.

Liam has a therapy "field trip" coming up with Bright Start.

It will be our last fun outing for awhile.

And with it goes all my hopes I had had for summer.

We didn't get a chance to go to church like we wanted.

That was a huge one for me.

The hope that we'd get to go regularly when Summer hit,

got me through winter.

Yes I watch the surmons online when my internet is working properly,

but its not the same.

I still feel blessed that he escaped summer,

with so few hospital stays,

and we got to make a little vacation

and take Liam to the beach for the first time.

I know I need to get those pictures posted.

And Liam is doing so much better than he was this time last year

so I have faith that next year we will have open doors

to do things differently.

I would love my kids to be able to go to

Church for the Christmas surmons for once.

And for Lanie to go to Sunday school every week.

I know a real Christmas tree is out of the question right now,

but maybe we can get a real pine wreath to hang,

or atleast show Liam a live tree.

His asthma and allergies just aren't up to a real tree yet.

But I'm getting ahead of myself here.

Lanie is doing great in school.

She loves it.

She was sad when she didn't have homework

the first month.

And now she finishes her homework

AND ASKS FOR MORE!!

I love that she loves school.

She does very well listening in class,

and concentrating.

She even has learned to read some.

Its so amazing.

She says she has lots of friends.

I've watched her play before school,

and she does have lots of friends lol.

I was quiet and shy when I was her age,

but not Lanie.

She's outgoing.

My little social butterfly.

She's very picky on her clothes

and always wants to look nice.

There are some outfits she picks out that I'm not sure I like

but since they aren't inappropriate for school

I let her explore her own fashion sense.

She should be allowed to be creative,

and develop her own personality.

I think soon I will take her shopping,

give her a budget,

and let her choose the clothes she likes.

(as long as they are appropriate for age and school)

I started working.

Its been officially a week now.

Last Friday I had orientation.

I'm doing good at work,

and having alot of fun.

It feels like a mini vacation away from home.

Since working,

I've been happier.

More energetic.

Justin has been able to be home with the kids

while i've been working.

Liam's doing great with it.

He still wants his cuddles and loves from me,

but he isn't as clingy.

Doesn't follow me from room to room.

He still throws a fit sometimes when I leave,

but not every time like he was doing.

When I get my first paycheck next week,

I think Ill surprise both kids with something.

I think new shoes and outfit for Liam

and Ill take Lanie on a girls day to pick out her own.

Then I'm going to use the rest of it to get started on Christmas.

So all in all life is pretty great.

God is amazing.

Say What!?

The last week or two have been a whirlwind of development for Little Lamb.

He started running!

I never thought I'd see the day when I'd have to say to him

"Don't run with that your going to get hurt!"

but sure enough 3 nights ago I did.

He has also been talking up a storm!

Saying things that cause us to turn our heads in shock and say

"Say what?!?!"

He loves to say the word broken.

He tells us EVERYTHING is broken,

including himself.

He pulls at his tubie and says

"broken"

I told him

"your not broken baby your perfect"

He smiles and hugs me.

Tonight he pointed at the ceiling and said

"floor"

I explained that it wasn't the floor.

"No baby thats the ceiling"

Liam responded "ceil".

"Yea baby ceiling".

He pointed again and said

"ceiling"!!!

I am so proud of him.

As of yesterday he says

"Nascar"

He has a long list of words now:

Fiss (fish)

Cuddles

"ook ook ook theres donald duck"

ball

bubbles

Walmart

Run

"Go go go run"

"go go go rae" (race)

Haro (our dog)

Cat

Jack (our cat)

Daddy

Mum

car

eat

wey wey (water or wet)

pay (play)

red

geen (green)

boo (blue)

Boo (as in peak a boo)

puple (purple)

cow

moo

duck

quack quack

woof woof

diaboo (diaper)

bye bye

hey

He adds words to his vocab daily.

They said he would catch up quickly,

I just didn't realize it would be this quickly.

He having growth spurts.

Acting like a healthy 2 year old.

He did have that seizure while sleeping a week ago last saturday.

Pedi isn't worried about that one.

He is worried about the ones he's having during the day.

I had been having such a hard time getting anyone to believe me about these episodes or to show interest.

I don't know why but Pedi believed me.

He knows me well enough now that Im not going to overreact so when I bring something to his attention he needs to listen to the whole story and then come to a conclusion.

Like Ive said a million  times before,

We have the best pedi.

Liams body will tense up and his extremities will shake and his eyes go blank.

An MRI has been ordered to check Liams brain.

Hopefully we wont find it worse off.

The last scan was when we left NICU and there was a bright spot on the cognitive thinking and fine motor skills area of the brain.

We are also waiting for Pulmonology to submit their paperwork as to why Liam needs synages this year.

As of right now he doesn't meet their requirements but we all know Liam needs them.

Its up to pulmonology to say

"this kid frequently requires oxygen and has chronic lung disease".

Praying they do this because we DONT need Liam getting RSV.

We need to keep him out and away from the hospital as much as possible.

More big news.

I am going back to work.

For the first time since April 2011

I will be working.

For the first time since Liam was born July 2011,

I will leave him to go to work.

It's so hard to believe that he's well enough to go back to work.

He's come to far!!

I forgot to mention that he is also eating ALOT by mouth!!

This kid eats almost as much by mouth as a kids his age is supposed to eat!

Amazing! 

2 months ago things didn't look like he'd be doing this great,

but here we are.

And I thank God for it!