Sunday Surprise

Today we surprised the kids with a swing set daddy worked really hard on building. We also to the sand table up to help Liam with his texture issues. At first he refused to touch it because he didn't like it but after about an hour of using sand tools he started putting his hands in the sand just feeling it. That's pretty amazing and such improvement! 

We had a great Sunday!!

Liam is still fighting his tube feeds. He runs away when it's feed time and scream the entire time. They don't hurt he just doesn't like them and would rather eat by mouth. Problem is he's not eating enough by mouth yet to stop day time feeds. He is however gaining weight finally. He's actually getting chubby. His legs, belly and face. His arms are still skinny. I've seen many CDH survivors and all have skinny arms. A lot have little upper body strength as well. I'm thinking it could be a CDH traight. Most have messed up ribs like Liam and are skinny most their life's. Even adult survivors I have seen. His legs seem to have lots of muscle in them. We've been doing diaphragm exercises to help strengthen his. He's been trying to blow whistles and he's actually making good noises. He can't blow bubbles yet but we're working on it. It helps that his big sister tries to teach him all kinds of stuff by just playing with him. She's so good with him. He would follow her to the end of the earth and back he loves her so much. I'm so glad they get along so well.