Flash Backs: Oxygen

Where we live you can see the Medical Hellicopter fly into the hospital and then fly away transporting whoever. It's very sad. They have a distenctive sound, unlike other copters. They fly right over our house and every time all we can  think is that there could be a baby fighting for its life on it. It's very sad for us. Our next thought was Liams last flight to UCSF how we stood there was watched them fly away with our baby boy and how long it would take us to drive to UCSF through a storm to get to him. It was a 5 hour drive through heavy traffic and heavy rain. The Bay bridge had flooded earlier that day and had been shut down for awhile. When we crossed it there was still lots of water on it as the rain beat down on the car. It was pretty scary. We didn't get to Liam until probably 9pm that night. That hospital stay lasted two weeks. Liam and I alone in a tiny portion of the room we had to share with another patient and had no privacy what so ever being right by the door. I litteraly had 2 feet of room from the sink to liams crib and the chair (pull out bed was there). Liam and I stayed cozied up cuddling all day long. It was a horrible stay. Liam had started desatting during shift change and his numbers kept getting lower and lower. He laid in my arms crying and miserable and in pain. I couldn't soothe him. I called for help 4 times then the mom of the patient next to me went to the nurses station and yelled at them to get their butts in there to help him. I will love that woman forever for that! A few minutes later a PCT (nurses assistant) came in and looked at Liam and ran outta the room. She came back with a nasal canula and hooked him up. Then she called the RT and doctors. I sat there crying because I was mad and devistated and nothing I did helped him. It took a few minutes but Liam's sats came up. They never did figure out why he needed oxygen but everytime they tried to wein they couldn't go below 1/4 litter. After two weeks of testing and unable to wein they decided it wasn't time to do his right diaphragm repair and that he just needed to stay on oxygen. Liam stayed on oxygen 24-7 from April 2012 to August 2012. It took a move back into the city to get him off daytime oxygen. Since then Liam still randomly needs oxygen. His Pulmonologist wants him on oxygen the minute his numbers hit 95 %. (Which is alot). His Puml, GI and Pedi all say its finnaly time to repair. His surgeon has the veto. Sorry about the tangent but thought I'd share more of Liam's past journey.