Allergies

Are you freaking kidding me!! I called walgreens at children's hospital to have two meds for Liam refilled. Their specialty and only that walgreens will fill them. They call be back 5 min later to inform me CCS is no longer covering his biotin. That we have to go jump through a million more hoops to get them to cover it and they're behind by weeks on all that. I know for a fact that it'll take more than a few weeks because CCS takes months! They know Liam has a genetic birth defect called Biotinidase deficiency that requires him to have it daily. Without it the most severe case is it'll lead to seizures, coma and eventual death without biotin. His geneticist said he has to have it and CCS is being freakin dumb asses. It's a damn good thing I have a bottle I purchased two months ago over the counter when we were trying to get refills from his doc. If it isn't one thing it's another. Did you know last year the med supply co was going to charge us for his feeding pump because CCS was refusing to pay for his the feeding upon rental? That's how stupid CCS is! The life of a mom with a special needs kid :( #biotin #biotinidasedefficiency #ccs #cdhturquoise #cdh #cdhawareness #cdhsucks 

Pollen is horrible right now and I'm seriously feeling it. Sharp pains in my nose, ears, scratchy throat, migrain, scratchy skin, irritated eyes, and now asthma attacks. Going to the doctor tomarrow. Also found out that the gyno doc never put in the referral for the ultrasound! So now their trying to follow up on it. So sick of everyone dropping the ball when it comes to my family's health. I've started giving both kids their allergy meds hoping to keep symptoms away. Liam is taking daytime breathing treatments. He hasn't wanted to eat all day long. He has been happily playing in his room completely destroying it lol. He loves taking all his toys out. 

Lanie of course has been outside on the swing and playing in the sand table since she finished her homework. I can't seem to keep her I side at all so I made sure she got her allergy meds, both singular and benedril. Liam hasn't been allowed out side nor has he asked to go out. Atleast I'm not getting a fight from him lol. You gotta take the wins where you can get them. 

Liam loves to give himself his treatment. He's very indipendant about that. Hates it when I try to hold it. 

Liam is working on her sandcastle skills. Here she built a "mountain" with a smiley face. always helps when you have the right tools and an amazing imagination ;)

Willie (4 1/2 month old boxer) and Haro (11/2 year old "muttwheiler") guarding Lanie while she plays in the backyard. They are such sweet dogs. Haro is short and hyper and loves to be taken on long walks. Willie hates leashes and wants to give kisses constantly. These two are an odd pair. They rough house with each other. Haro is half the size of Willie but tried to bully Willie. He wants whatever Willie has even if it's the same thing you gave him. He doesn't want his. They get along great though. I think it's all a game to them. These trek hate being apart. Haro is rough with the kids. He's a jumper. He knocked Liam down two days ago my accident because he doesn't understand. He hadn't had much contact with Liam so he gets excited and wants to love on him. Willie having been inside the majority of the time until this last month knows better. He gives Liam kisses but stays calm when he's by Liam. Willie has been great therapy for Liam. 

#cdhturquoise #cdh #cdhawareness #allergies #asthma #puppylove #sand #architech #imagination