This isn't a fairy tale. Our lives have been forever changed by Congenital Diaphragmatic Hernia. We're just trying to find a way to make it work.
Tuesday, June 18, 2013
Officially 1 month
It's officially been a month since Liam started walking and life has changed so much. Liam no longer crawls. He can stand up without using anything to help him. He went from walking extremely slowly without being able to hold anything to now holding toys in both hands, talk and practically run. It's more like fast walking lol. He's hit the terrible 2 stage and throws himself down during fits. He plays with hotwheels all the time. He growing so much. Its so exciting. He's still having sleep issues, like alot of other CDHers. Even through Singular, Benedril and Melatonin (all part of his night time med schedule) he still can stay awake. Last night he was up until 10:45pm then woke up again at 5am (usually its between 1a and 4am). Then slept until after 9am. He has an appointment with his pediatrician Thursday then with his pulmonologist Friday. I'm not ready to hear anymore bad news so praying we hear all good stuff.
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