A few things happened today. The GI ruled out blockage and slipage of the GJtube. He started asking questions and after a few answers he had a theory that Liams problem could be metabolic or that he is having seizures. I explained how I.saw his eyes roll up into the back of liams head and how at UCSF i thought he had been having seizures. This was after he suggested seizures. So tomarrow liam will be getting a eeg done to monitor brain activity. If it is seizures then I pray they see it and find a way to stop them. If its metabolic then we could hope its not something really bad. God has a plan and were just waiting to find out what it is. The process with a CDH child is one step forward, two steps back but were keeping the faith every step of the way. Sent from Yahoo! Mail on Android |
This isn't a fairy tale. Our lives have been forever changed by Congenital Diaphragmatic Hernia. We're just trying to find a way to make it work.
Tuesday, March 6, 2012
New Development
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