Liam Update

I had this whole speal typed out and decided to scrap it and just updated about Liam since it was just so negative.

Liams doing ok this afternoon. He got really sweaty earlier but wasnt running a fever. Its proof that hes breathing harder than he should be. If I take him to the hospital Im just going to be told that this is how hes going to be for awhile, in constant respitory distress and that theres nothing we can do for him. I cant stand hearing that and am frustrated. If only we could get him up to the specialist in SF and see what they have to say. I thought the hardest part was over when we initially got released from UCSF. Nothing they did or said could prepare us for all the hospital stays weve had and will end up having. I dont want to contact the NP via email just to have her tell us that the only way they can do anything or give a diagnosis is to take him there. Its something theyve told us before. I would love to be able to take my son to them everytime something goes wrong but the sad truth is we just cant afford it. Weve thought of moving to SF but that was squashed because of the cost of living. All I can do is continue to pray that we are doing the right thing and that God is watchiing closely over Liam and guiding his doctors on the right path. This is yet another test of our faith.