Easter is right around the corner and we couldn't be more excited. Easter means great weather and no longer being stuck in doors. Family gatherings, remember what Jesus sacrificed for us, and the start of all the summer holidays. For Lanie it means hunting Easter eggs, spending the weekend having tons of fun, and candy. This year is special for us. It's little Liam Lambs first Easter! YAY!! And we are deteremined for him to "hunt" his first Easter egg. It also means more photo opps, so lets get started:
We decorated a little bit today. Started with the bunny flag so the Easter bunny knows he's welcome here...
Lanie and Liam decorated plastic eggs....Lanie and I decorated while Liam tried to eat them...
They turned out so cute...
Think someone's obsessed with rabbits??? Naw not Lanie ;)
Then we decorated the tree, making it an Easter egg tree...I don't get it either but it was fun...
We hope you all have a wonderful Easter!
Liam's Update: ER Visit
Liam's been having alot of respitory problems. Weve been having to give him double breathing treatments and even tried adding a different treatment that works like albuterol. Wasn't working. around 5:30-6pm yesterday his pediatrician text me to see how he was and check his sats and breathes per minute. He was 92-93% sat and 63 breathes per minute. He told us to take him to Childrens he was afraid he might have occult pneumonia and the fact that all the breathing treatments we were giving him were good. He was getting too much albuterol. I loaded him up and drove the hour it took to get there. Checked into ER and after vitals had to wait back in the waiting room until a bed opened up. That was the first time Liam had ever had to be in the waiting room, they usually get him right back because of his condition and being so suseptable to viruses. I was scared. We got back into a room and when the ER doc finnaly came in I started to tell him whats been going on with Liam, his medical background and what meds he was on. The man wouldn't let me get through half of it. He ordered an xray, RSV test, 1 hour long continuos breathing treatment and oral steriods. Then sent him home. When he released Liam his breathes per min per 73 and he had just desatted to 89% and sat there for 5 min. Ofcourse I was pissed and frustrated. We're at home, and Liams oral steriod are only 2mls once a day. He's not doing any better. Breathes per min are 63 still and nothing has changed. Our ped is a bit frustrated and this just re-enforced for him that Liam need to get up to UCSF to see the specialist. Thats 4 hours away, in good traffic. Today I was told that he thought Liam needed to go next week. I wouldn't believe what he was saying. He said he'd call up there and talk to Barb, love her by the way, and see what they think. I have no idea how Im going to afford to get Liam up there, and I did tell the doctor that. He was trying to joke around to make me feel better and told me to play the lottery. We had bought a ticket last week, but I went and bought one today hoping that we will win something so we can get him up there. Now were waiting to find out if he has to go up there or if theres something else we can do here for him. Ive stood back from FB today trying to relax, not stress and just spend time with my family. Everytime my phone goes off Im thinking its the doctor calling to tell me what the plan is. My stomach feels like theres a brick in it. Ive just been trying to wrap my head around the fact that my son is so sick but if you look at him he looks perfectly healthy and fine and happy...
Liam is a fighter, always has been and always will be. I just want my son fixed, thats all I ever wanted. I wish I could do better for him. I feel like a failure that I cant just fix him. I know he loves me and in his eyes Ive done no wrong. Unconditional love is amazing that way. Please pray for Liam. Im not sure exactly what for, just pray that the best happens for him. Pray that we figure out how were going to get him up there if thats what he needs. For now we just wait, and we pray.
I just want to sa our peditrician has gone above and beyond his duty to see to Liam's health. He has been absolutly amazing. He's given us his cell and has been there for us at all hours of the night. Hes offered to do home visits after hours when Liams gotten real sick. He's just been amazing and has helped so much and been so understanding. He doesn't lie or beat around the buch with us, just tells us flatt out what he thinks and how he feels. He just an amazing doctor. The fact that he works with other CDH kids in our area so he knows CDH has been such a blessing.
Ive got to hand it to the Surgical team at UCSF for dealing with us long distance. Im sure having to work with other doctors and try to diagnose by only what another doctor is telling them hasn't been easy. They have been amazing in my eyes. They could have just washed their hands with him, but stuck in there. We miss the great team they have up there and me miss our NICU primaries Sue and Cindy but this is so not how we wanted to have to see them again.
God has blessed us so much with the medical team that has worked with Liam. Weve been blessed that he has done as good as he had and that he had got to come home from NICU so soon. Liam is a miracle. Thank you all for your continues prayers for him. Im trying to stay strong. After 8 months its getting hard to hold back all the emotions. I will always be there for my son and I refuse to give up on him. Weve come this far and we have God on our side and Angels watching over us.
Tomarrow is CDH awareness day. Please help spread awareness and tweet #cdhbabies and lets starts a trend. Follow @cherubliam and you can just retweet all the post I made today to make it easy.
Sending thoughts and prayers his symptoms go away or the doctors find out exactly what is going on! Such a beautiful baby boy - and his big sister is beautiful too!
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