Since we've been home Liam has been doing just fine. Ever since the doctor at CHCC took him off the Biotin he hasn't thrown up. No throwing up is great because its less a chance he will develop phnemoia again. Liam will have to see the genetisist as a follow up here in a few months to make sure he is thriving off the Biotin. We're praying he has no ill efects from his Biotinidase Deficiency and being allergic to the Biotin. Liams trying to sit up more now. He can sit by himself in his tub and tried to sit up in his bouncer. He is also trying to crawl. Liam can get up on his knees but has no strength in his arm to push himself up. We cant take him out of the house because to expose him to the elements could mean more asthma attacks. We can only take him out for appointments. It's hard but were managing. Lanie has been super excited that we're home. Unfortunately shes been sick with allergies the whole time. She gets better then goes outside and gets worse. Ive been busy with Liam and all his meds and working with him as well as cleaning the house. Funny how you miss things like cleaning when your stuck in the hospital. Our cat Jack has missed us as well. One day we had a visit from Aunt Rose and Uncle Cliff and he felt like he wasnt getting enough attention so he sought it by curling up in Liams crib. I wasnt happy. I had just made the crib and had to turn around and strip it and dissenfect it and remake it. Yes I dissinfected it because Id rather be too safe. Lanie got to play in the sprinkler in her new bathing suit Aunt Rose and Uncle Cliff bought her for her birthday. It was the first time this summer and she loved it. We had hoped Liam would get his chance to play in a kiddie pool this summer but theres just no way. Today is Justin and my 7 year anniversary. This last year has been the hardest by far with everything we've gone through with Liam. We're praying things get better from here. Heres a bunch of pictures for you.
<a href="http://www.flickr.com/photos/truliefree/7338190272/" title="P1030490 by truliefree, on Flickr"><img src="http://farm9.staticflickr.com/8155/7338190272_e321ea30f9.jpg" width="500" height="374" alt="P1030490"></a>
Miss Lanie in her pretty Bohemian style dress (May 2 2012)
<a href="http://www.flickr.com/photos/truliefree/7338206032/" title="P1030492 by truliefree, on Flickr"><img src="http://farm8.staticflickr.com/7086/7338206032_ee59a340eb.jpg" width="375" height="500" alt="P1030492"></a>
<a href="http://www.flickr.com/photos/truliefree/7338224966/" title="01a by truliefree, on Flickr"><img src="http://farm9.staticflickr.com/8151/7338224966_2c8a31fe2c.jpg" width="375" height="500" alt="01a"></a>
Lanie's Hippie Photo Shoot (May 18 2012)
<a href="http://www.flickr.com/photos/truliefree/7338231400/" title="01a (3) by truliefree, on Flickr"><img src="http://farm9.staticflickr.com/8012/7338231400_bb3ccf4d3c.jpg" width="375" height="500" alt="01a (3)"></a>
<a href="http://www.flickr.com/photos/truliefree/7338238622/" title="05 by truliefree, on Flickr"><img src="http://farm8.staticflickr.com/7225/7338238622_4c6c4efdef.jpg" width="375" height="500" alt="05"></a>
<a href="http://www.flickr.com/photos/truliefree/7330471206/" title="Photo104.jpg by truliefree, on Flickr"><img src="http://farm8.staticflickr.com/7229/7330471206_49bc24e9c7.jpg" width="320" height="240" alt="Photo104.jpg"></a>
Liam with his new toy. He's getting better at handling noise and light.
Lanie is getting a first hand lesson in nature. In a tree out back, a family of Dove's have built a nest and laid two eggs. We showed Lanie and are teaching her that you cant touch the nest or the eggs because the parents will abandoned the nest. She's also learning first hand the cycle. Eggs, to birds. Then she will get to watch them hatch and grow until they fly away. She thinks its amazing. (June 1 2012)
<a href="http://www.flickr.com/photos/truliefree/7338508394/" title="P1030922 by truliefree, on Flickr"><img src="http://farm8.staticflickr.com/7243/7338508394_c05a43930f.jpg" width="500" height="375" alt="P1030922"></a>
<a href="http://www.flickr.com/photos/truliefree/7338550968/" title="P1030926 by truliefree, on Flickr"><img src="http://farm8.staticflickr.com/7084/7338550968_2d08e4490a.jpg" width="375" height="500" alt="P1030926"></a>
Liam's 10 Month Picture's:
These photos are bitter sweet because it was Liam's first time at a park, the first time he got to touch grass and act semi normal. And because of this he ended up at the hospital for a 10 day stay due to an allergic reaction to grass and asthma attacks. We wont be able to get pictures like these again for a long while.
<a href="http://www.flickr.com/photos/truliefree/7338244694/" title="01 by truliefree, on Flickr"><img src="http://farm9.staticflickr.com/8023/7338244694_93ee48c66c.jpg" width="500" height="375" alt="01"></a>
<a href="http://www.flickr.com/photos/truliefree/7338250752/" title="02 by truliefree, on Flickr"><img src="http://farm8.staticflickr.com/7230/7338250752_836ff79866.jpg" width="500" height="375" alt="02"></a>
<a href="http://www.flickr.com/photos/truliefree/7338255700/" title="04 by truliefree, on Flickr"><img src="http://farm8.staticflickr.com/7219/7338255700_8b0f08e607.jpg" width="500" height="375" alt="04"></a>
<a href="http://www.flickr.com/photos/truliefree/7338260920/" title="06 by truliefree, on Flickr"><img src="http://farm8.staticflickr.com/7225/7338260920_0031014dbe.jpg" width="500" height="375" alt="06"></a>
<a href="http://www.flickr.com/photos/truliefree/7338288984/" title="22 by truliefree, on Flickr"><img src="http://farm9.staticflickr.com/8150/7338288984_5f99a9b63a.jpg" width="375" height="500" alt="22"></a>
<a href="http://www.flickr.com/photos/truliefree/7338296488/" title="25 by truliefree, on Flickr"><img src="http://farm9.staticflickr.com/8003/7338296488_35966ca559.jpg" width="375" height="500" alt="25"></a>
Liam's sitting in his tub and loving his bath May 31 2012:
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<a href="http://www.flickr.com/photos/truliefree/7338438988/" title="P1030910 by truliefree, on Flickr"><img src="http://farm8.staticflickr.com/7074/7338438988_8a3605743a.jpg" width="500" height="375" alt="P1030910"></a>
<a href="http://www.flickr.com/photos/truliefree/7338467622/" title="P1030917 by truliefree, on Flickr"><img src="http://farm8.staticflickr.com/7241/7338467622_84864e197c.jpg" width="375" height="500" alt="P1030917"></a>
Lanie practicing her Letter A (June 1 2012)
<a href="http://www.flickr.com/photos/truliefree/7338394370/" title="P1030904 by truliefree, on Flickr"><img src="http://farm8.staticflickr.com/7236/7338394370_46799cf51e.jpg" width="500" height="375" alt="P1030904"></a>
Visit From Aunt Rose and Uncle Cliff: (June 2 2012)
<a href="http://www.flickr.com/photos/truliefree/7338604532/" title="P1030941 by truliefree, on Flickr"><img src="http://farm9.staticflickr.com/8155/7338604532_eb8b91ce46.jpg" width="500" height="375" alt="P1030941"></a>
<a href="http://www.flickr.com/photos/truliefree/7338647420/" title="P1030946 by truliefree, on Flickr"><img src="http://farm8.staticflickr.com/7213/7338647420_eb8416a34f.jpg" width="500" height="375" alt="P1030946"></a>
<a href="http://www.flickr.com/photos/truliefree/7338687158/" title="P1030953 by truliefree, on Flickr"><img src="http://farm8.staticflickr.com/7222/7338687158_0383bc31b2.jpg" width="500" height="375" alt="P1030953"></a>
<a href="http://www.flickr.com/photos/truliefree/7338735492/" title="P1030958 by truliefree, on Flickr"><img src="http://farm8.staticflickr.com/7093/7338735492_71141e22cd.jpg" width="500" height="375" alt="P1030958"></a>
Liam playing with his nebulizer cord
<a href="http://www.flickr.com/photos/truliefree/7338776996/" title="P1030962 by truliefree, on Flickr"><img src="http://farm9.staticflickr.com/8166/7338776996_a23a4c5429.jpg" width="375" height="500" alt="P1030962"></a>
Liam Playing with his new toy
<a href="http://www.flickr.com/photos/truliefree/7338784506/" title="P1030964 by truliefree, on Flickr"><img src="http://farm9.staticflickr.com/8163/7338784506_8ab1dcb2d8.jpg" width="375" height="500" alt="P1030964"></a>
Lanie in her new bathing suit playing in the water (June 3 2012)
<a href="http://www.flickr.com/photos/truliefree/7338796904/" title="P1030974 by truliefree, on Flickr"><img src="http://farm8.staticflickr.com/7213/7338796904_8428145898.jpg" width="375" height="500" alt="P1030974"></a>
<a href="http://www.flickr.com/photos/truliefree/7338833346/" title="P1030989 by truliefree, on Flickr"><img src="http://farm8.staticflickr.com/7215/7338833346_713ddc3ff7.jpg" width="375" height="500" alt="P1030989"></a>
<a href="http://www.flickr.com/photos/truliefree/7338884012/" title="P1030999 by truliefree, on Flickr"><img src="http://farm8.staticflickr.com/7105/7338884012_8c19bae3a4.jpg" width="500" height="375" alt="P1030999"></a>
<a href="http://www.flickr.com/photos/truliefree/7338190272/" title="P1030490 by truliefree, on Flickr"><img src="http://farm9.staticflickr.com/8155/7338190272_e321ea30f9.jpg" width="500" height="374" alt="P1030490"></a>
Miss Lanie in her pretty Bohemian style dress (May 2 2012)
<a href="http://www.flickr.com/photos/truliefree/7338206032/" title="P1030492 by truliefree, on Flickr"><img src="http://farm8.staticflickr.com/7086/7338206032_ee59a340eb.jpg" width="375" height="500" alt="P1030492"></a>
<a href="http://www.flickr.com/photos/truliefree/7338224966/" title="01a by truliefree, on Flickr"><img src="http://farm9.staticflickr.com/8151/7338224966_2c8a31fe2c.jpg" width="375" height="500" alt="01a"></a>
Lanie's Hippie Photo Shoot (May 18 2012)
<a href="http://www.flickr.com/photos/truliefree/7338231400/" title="01a (3) by truliefree, on Flickr"><img src="http://farm9.staticflickr.com/8012/7338231400_bb3ccf4d3c.jpg" width="375" height="500" alt="01a (3)"></a>
<a href="http://www.flickr.com/photos/truliefree/7338238622/" title="05 by truliefree, on Flickr"><img src="http://farm8.staticflickr.com/7225/7338238622_4c6c4efdef.jpg" width="375" height="500" alt="05"></a>
<a href="http://www.flickr.com/photos/truliefree/7330471206/" title="Photo104.jpg by truliefree, on Flickr"><img src="http://farm8.staticflickr.com/7229/7330471206_49bc24e9c7.jpg" width="320" height="240" alt="Photo104.jpg"></a>
Liam with his new toy. He's getting better at handling noise and light.
Lanie is getting a first hand lesson in nature. In a tree out back, a family of Dove's have built a nest and laid two eggs. We showed Lanie and are teaching her that you cant touch the nest or the eggs because the parents will abandoned the nest. She's also learning first hand the cycle. Eggs, to birds. Then she will get to watch them hatch and grow until they fly away. She thinks its amazing. (June 1 2012)
<a href="http://www.flickr.com/photos/truliefree/7338508394/" title="P1030922 by truliefree, on Flickr"><img src="http://farm8.staticflickr.com/7243/7338508394_c05a43930f.jpg" width="500" height="375" alt="P1030922"></a>
<a href="http://www.flickr.com/photos/truliefree/7338550968/" title="P1030926 by truliefree, on Flickr"><img src="http://farm8.staticflickr.com/7084/7338550968_2d08e4490a.jpg" width="375" height="500" alt="P1030926"></a>
Liam's 10 Month Picture's:
These photos are bitter sweet because it was Liam's first time at a park, the first time he got to touch grass and act semi normal. And because of this he ended up at the hospital for a 10 day stay due to an allergic reaction to grass and asthma attacks. We wont be able to get pictures like these again for a long while.
<a href="http://www.flickr.com/photos/truliefree/7338244694/" title="01 by truliefree, on Flickr"><img src="http://farm9.staticflickr.com/8023/7338244694_93ee48c66c.jpg" width="500" height="375" alt="01"></a>
<a href="http://www.flickr.com/photos/truliefree/7338250752/" title="02 by truliefree, on Flickr"><img src="http://farm8.staticflickr.com/7230/7338250752_836ff79866.jpg" width="500" height="375" alt="02"></a>
<a href="http://www.flickr.com/photos/truliefree/7338255700/" title="04 by truliefree, on Flickr"><img src="http://farm8.staticflickr.com/7219/7338255700_8b0f08e607.jpg" width="500" height="375" alt="04"></a>
<a href="http://www.flickr.com/photos/truliefree/7338260920/" title="06 by truliefree, on Flickr"><img src="http://farm8.staticflickr.com/7225/7338260920_0031014dbe.jpg" width="500" height="375" alt="06"></a>
<a href="http://www.flickr.com/photos/truliefree/7338288984/" title="22 by truliefree, on Flickr"><img src="http://farm9.staticflickr.com/8150/7338288984_5f99a9b63a.jpg" width="375" height="500" alt="22"></a>
<a href="http://www.flickr.com/photos/truliefree/7338296488/" title="25 by truliefree, on Flickr"><img src="http://farm9.staticflickr.com/8003/7338296488_35966ca559.jpg" width="375" height="500" alt="25"></a>
Liam's sitting in his tub and loving his bath May 31 2012:
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<a href="http://www.flickr.com/photos/truliefree/7338438988/" title="P1030910 by truliefree, on Flickr"><img src="http://farm8.staticflickr.com/7074/7338438988_8a3605743a.jpg" width="500" height="375" alt="P1030910"></a>
<a href="http://www.flickr.com/photos/truliefree/7338467622/" title="P1030917 by truliefree, on Flickr"><img src="http://farm8.staticflickr.com/7241/7338467622_84864e197c.jpg" width="375" height="500" alt="P1030917"></a>
Lanie practicing her Letter A (June 1 2012)
<a href="http://www.flickr.com/photos/truliefree/7338394370/" title="P1030904 by truliefree, on Flickr"><img src="http://farm8.staticflickr.com/7236/7338394370_46799cf51e.jpg" width="500" height="375" alt="P1030904"></a>
Visit From Aunt Rose and Uncle Cliff: (June 2 2012)
<a href="http://www.flickr.com/photos/truliefree/7338604532/" title="P1030941 by truliefree, on Flickr"><img src="http://farm9.staticflickr.com/8155/7338604532_eb8b91ce46.jpg" width="500" height="375" alt="P1030941"></a>
<a href="http://www.flickr.com/photos/truliefree/7338647420/" title="P1030946 by truliefree, on Flickr"><img src="http://farm8.staticflickr.com/7213/7338647420_eb8416a34f.jpg" width="500" height="375" alt="P1030946"></a>
<a href="http://www.flickr.com/photos/truliefree/7338687158/" title="P1030953 by truliefree, on Flickr"><img src="http://farm8.staticflickr.com/7222/7338687158_0383bc31b2.jpg" width="500" height="375" alt="P1030953"></a>
<a href="http://www.flickr.com/photos/truliefree/7338735492/" title="P1030958 by truliefree, on Flickr"><img src="http://farm8.staticflickr.com/7093/7338735492_71141e22cd.jpg" width="500" height="375" alt="P1030958"></a>
Liam playing with his nebulizer cord
<a href="http://www.flickr.com/photos/truliefree/7338776996/" title="P1030962 by truliefree, on Flickr"><img src="http://farm9.staticflickr.com/8166/7338776996_a23a4c5429.jpg" width="375" height="500" alt="P1030962"></a>
Liam Playing with his new toy
<a href="http://www.flickr.com/photos/truliefree/7338784506/" title="P1030964 by truliefree, on Flickr"><img src="http://farm9.staticflickr.com/8163/7338784506_8ab1dcb2d8.jpg" width="375" height="500" alt="P1030964"></a>
Lanie in her new bathing suit playing in the water (June 3 2012)
<a href="http://www.flickr.com/photos/truliefree/7338796904/" title="P1030974 by truliefree, on Flickr"><img src="http://farm8.staticflickr.com/7213/7338796904_8428145898.jpg" width="375" height="500" alt="P1030974"></a>
<a href="http://www.flickr.com/photos/truliefree/7338833346/" title="P1030989 by truliefree, on Flickr"><img src="http://farm8.staticflickr.com/7215/7338833346_713ddc3ff7.jpg" width="375" height="500" alt="P1030989"></a>
<a href="http://www.flickr.com/photos/truliefree/7338884012/" title="P1030999 by truliefree, on Flickr"><img src="http://farm8.staticflickr.com/7105/7338884012_8c19bae3a4.jpg" width="500" height="375" alt="P1030999"></a>
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