Exciting News...

Liam has NO teeth...He still doesn't want to eat...but.....

HE IS OFFICIALLY A SITTER!!!

It's been am exciting day. During his BrightStart visit he sat for more than 20 minutes playing with the fisherprice gumball machine toy they brought. He was only showed once how to push down the lever and make the see and say balls pop out,  then he mastered it. It was so amazing to see him doing this and seeing the progress. Yesterday he could only sit for a few seconds on his own and today, WHAM, hes got it down.

More EXCITING news is that I cought Liam doing the army crawl this morning before BrightStart came. YES THE ARMY CRAWL! Using his legs to propel him and his elbows to get to the water trap in in his Oxygen line. He was determined. When he got his hands on it, he was so thrilled. He played with that thing and squelled. Extremely adorable. It was only about 6 inches of movement but for Liam thats HUGE.

Liam has been on the go all day, only concking out for a short 20 minute nap. He is really reaching a turning point. Its a good thing he had a GI appointment today. We started him on 24 cal (20 cal formula with Duocal to make 24 cal) for 22 hours a day. In a few days we're going to try 27 cal. Theyre supprised that he gained anything being only on 20 cal for so long. Because of all the issues, he will be seen again in  3 weeks. Liam has been having Night Terrors. They stopped a few days after we got home. We had 5 days no night terrors then I took Liam to the doctors yesterday and the GI specialist today and suddenly he has a night terror. Its almost like he knows too well whats going on and that being there scares him. Liam is also in pain from the change in his feeds. Hopefully it'll pass quickly because our little lamb needs all the calloried he can get.

Exciting new for Lanie as well. Today she got weighed at WIC and she weighed a whopping 40 pounds 10 ounces and measures 39 inches tall. I cant believe how fast shes growing up. She's still the master of candyland and wins 2 out of 3 times. She's been practicing her skating in the kitchen and makes up dances and shows. She takes care of her rabbit and feeds the cat. And recently shes gotten very good at cleaning her room. Shes a "Chip and Dale Rescue Rangers" and "Tale Spin" fan. She enjoys watching "Mickey Mouse Club House" and "Jake and the Neverland Pirates" with Liam every morning. She likes to make us all laugh. Shes become such an outgoing little girl. It's been amazing watching her grow.

We all can't wait for Liam's first birthday. We're counting down the days and praying he doesn't end up back in the hospital.

More things we found out yesterday/today from doctors:

*Next month Liams feeds will be changing from formula to something else.

*PT/OT  refereals have been submitted and both our ped and GI agree with this.

*GI is curious as to how long the pulmonologist will wait to do the right repair. They dont want them to wait until he is critical in weight and strength and Pulmonology wants to wait until the last minute in case he doesn't end up needing it.

*Both GI and Ped dissagree with the Pulmonologist in weining Liams oxygen because it makes him tachypneac and uses more energy to breathe therefore taking away from growth when we arent able to get enough in him as it is.

For now we're enjoying our time at home together. We may be stuck at home, unable to take Liam out of the house except for doctor appointments, but its better than being stuck at the hospital without our family together. God has given us a whole week at home together so far and its been awesome. We thank God for watching out for us and knowing when we've reached our limits, even if we think its more than we can handle.

Some exciting news in the CDH world:

Sir Isaac Mathew Rhodes is finnaly home for the very first time. It's been a long exhausting and trying road for his family and even though theyre home theyve got along journey ahead of them. Please keep them in your prayers. Pray for strength and health. No more hospital stays would be ideal. Sir Isaac has a trach and has been doing good since he got it. His mama and grandma couldnt be happier right now. Here's to you Sir Isaac and your AMAZING fight! Thinking of you and praying for you always!

Princess Alexandria oxygen has been weined giving her some time off the last I read. She seems to be thriving wonderfully and is beautiful as can be. Keeping you in our thoughts and prayers!

Cherub Killian laughed out loud for the first time today. Aunt Layna is asking for prayer for tomarrow when they try baby food for the first time. Keeping you in our prayers! Praying Killian takes to the baby food!

Mr Cooper Strickland is finnaly gaining weight. His mom posted that he's finnaly weighing in at 16 pounds 8 ounces! YAY COOPER! He recouvered from his first cold at the end of May. Keeping you in my prayers buddy!

Clara Bug enjoyed her first birthday back in April and is now prepairing for her first trip to the beach. Her smile shines through the wonderful pictures her mommy takes and lights up the world. So very happy your doing so well Miss Clara and enjoying so much life has to offer. Always thinking of you and praying for you!

Others we're praying for:

Little Liam Lyon was born with half a heart. Ive been following his amazing journey. This little guy is a true fighter and such a sweet boy. Liam bodily swelling has gone down. Please pray that it continues to decrease. This little guy has been through so much. He's had a heart tranplant and has been in the hospital pretty much his entire life. He has a facebook page "I Love Liam Lyon" Check it out. He also has people all over the world praying for him and lighting theyre porch lights and candles for him everynight. (Page called "Lights for Liam") The family has been through so much. Check out his page, his story and please pray for him and his family, WE LOVE YOU LIAM LYON!!

Always prying for our little LULU who we met in UCSF ICN. She had open heart surgery a few days after birth and has been doing great since. She is such a sweet precious baby girl. WE LOVE YOU LULU!!!



Little David was born premature and we met him and his parents up at UCSF as well. This little guy has come so far and isnt so little anymore. He just celebrated his first birthday and has a baby brother on the way. WE LOVE YOU DAVID!!!