Wednesday, June 27, 2012

Jump For Joy

Praise the Lord!
We got some super awesome good news!
Liam had his GI appointmentment today and the GI had nothing but awesomely great news for us. So good, he told me to
"Do the wave,
jump for joy,
drink a glass a wine
and celebrate"
As you know Liam has had alot of issues and has been so far behind in growth. He's NEVER been on the curve of the charts.
Well guess what?!
HE'S ON THE CHARTS!!!!!
GOD IS AWESOME!!
Liam is in the 25th percentile for his head size
and the
50th percentile for weight.
He is on the curve baby!!
His length is short for his age,
but his weight to length ratio is perfect.
To quote our GI,
"He's exactly where we want him to be"
He said this was exactly where UCSF has wanted him to be at this entire time. And because we found something that is working he didn't want to touch a thing. He didn't want to rock the boat when Liam has done so well at home for 4 weeks now. YES 4 WEEKS!!!
THANK YOU JESUS!!
And tuesday it'll be 5 weeks!!
AMAZING!!
So for the next 3 months Liam will continue to be on formula when most babies would be taken off. It provides all the nutrients he needs so no harm. Then when we do switch, he will go on PediSure.
So ofcourse when I was told all this amazing news,
I cried.
Honest to God in tears,
completly swamped with emotions.
This is what we've been waiting for. What we've been working so hard for. All the formula switches, all the trials and errors was all for this.
This means much more than Liam getting taller
or getting chunkie,
which by the way he has cankles,
a belly,
and getting man boobs lol,
this means so much for his respitory issues.
We kept getting told that if only we can get him growing then his respitory issues would probably get better. This means his left lung finnaly has enough calories to promote growth and healing. With him getting taller, his right lung will have more room to expand and will be able to be stronger than his diaphragm. Meaning if all is working the way we pray it is, then Liam's respitory issues are on the mend. Even though thats what all the specialist are hoping for, and that we have no fact supporting that this will happen, its still a bright light at the end of a very dark tunnel.
Liam will see his Pulmanologist on tuesday and we are praying that they have good news for us as well.

We all knew Liam's GJ tube needed to be replaced and we've been waiting for that call. Today that call came in. He will be going into surgery on Friday July 6th at 10:30am. If all goes the way it supposed to go, then he will be comming home the same day. Surgery means alot of things. The actualy "surgery" itself is no big deal because they wont be cutting into him. Theyre just taking one tube out and replacing it with the new one. Were going to run into problems when its time to put in an IV because Liam is an impossible poke. Were praying that his veins have healed so that the surgeons can easily put in an IV. This is necessary for surgery. Because Liam is getting anesthesia and because of that, he has to be intubated. We got very blessed that the last time Liam was intubated that there were no issues. Usually when he is intubated then exubated his lungs partially colapse and it takes a new days to reinflate. Were praying that again Liam wont have these issues. We are nervous but we know that it is in God's hands.

Again,
THANK YOU THANK YOU THANK YOU JESUS!
Your are an amazing Healer!
Praise the Lord!


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