It seemed like everytime we turned around yesterday something disasterous struck. From the time we woke up, or got woke up, the day was bad. It started with the 6:30am phone call informing us of Justin's Grandpa's passing. We knew it would eventually happen but still it was shocking. We spend most of the morning trying to rise out of the fog we were in. We decided to stick with our plans for the day since there was nothing we could do to change the mornings events. We took the kids to the Tulare Outlet and did alittle shopping. After 3 hours of shopping and walking, Liam vommited formula. I knew it wasnt a good sign. I took him to the car to change him while Justin went into another store. I unbutton his outfit and see the balloon that keeps in Liams GJtube. I freaked. I called Justin and he came running. The only part still in his stomach was the very tip of the Jtube. We have no idea when it happened. Liam never cried or made a peep. After I called his ped and his GI the conclusion was to take him into his GI's office so his nurse could put in a Gtube. From Tulare we rushed to Exeter and praise the Lord, they had no issues putting in a Gtube. This event just put us further into our fog. Justin thinks it might have been his fault. He thinks his Gtube extension got stuck when he was putting him in his carseat earlier that day. I however am not sure if that was if but its the only thing we can think of. Unless little man grabbed it through his clothes and pulled really hard when we werent looking. And considering Liam didnt need a diaper change, or a clothes change we had no idea this had happened until I went to change him. Liam is now schedueled for surgery on thursday to place another GJtube. Because of Liams feeding issues, weve had to drastically slow down his feeds from 48mls per hr x 20 hrs to now 20mls per hr x24 hrs. We started at 15mls and worked our way up. We are increasing as tollerated. Unfortunately this means Liam is loosing weight every hour that passes and his breathing is already on a slow decline. He has required additional breathing treatments. We are praying that we can continue increasing his feeds to capacity. After we got home from the GI there was a not on the door that UPS tried to deliver a package. The package was Liams meds from Valley Childrens. One of the meds has to be refridgerated. Because they couldnt deliver it friday that will be trying to redeliver it monday but the icepacks arent going to hold out that long. After we left GI with the ok to continue our "normal" lives, we went home then decided we would continue as planned. We did the only thing that did not turn disasterous for us and went to a birthday party. We needed the reprieve. We've all been a little more nervous about handleing Liam, afraid that one of us might accidentally pull his tube out or that Liam will vommit on us. We are praying today will be better. We are also praying Liams lungs dont decline and cause issues for his surgery and that the surgery isnt on the same day as Grandpa's funeral.
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