Last night liam started giving up problems. He desatted to 86 and stayed down for 5min before going up to 91 then back down. We were getting ready to turn on oxygen when he went to 93/95 and stayed there. At 6:30am he had a 3min episode. So far today he has desatted just a few times for quick burst. His respitory rate has been the highest ive seen at 78. Pulmonology came in and we did a test that measures the pressure on your intake of breathe. Liam had really great numbers. The highest one was 51. To put it in prospective an adults breathes in 60 and above. This test was really important because the needed to know if his diaphragm was strong enough to do surgery. It is. Im not sure if this actually means theyll do the repair but the docs were happy with the numbers. Were still at a stand still but getting important answers, so its more like a slow progression. Today being wensday I doubt that if they decide to do the repair that itll be this week. Although I shouldnt say that because these things are always last minute, no warning.
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