During rounds today I learned a few things that hadnt been brought to my attention before. The main issue was they are thinking he has pulmonary hypertension. He has many symptoms of it. They also said he needed an ECHO but the pulmanologist at childrens would do thag along with the CT scan and bronchioscope. He also has another condition that i keep forgetting the name of meaning something jn his lungs afe floppy. And UCSF agreed to reactive airway disease. Liam is going home on half a litter of oxygen. Its just enough to keep him from desatting and takes alittle of the work off his lungs. I know he would do even better on more but this is enough until we get him to childrens on monday for pulmonology to do their thing. This isnt the end of our journey by a long shot. I doubt were even halfway through our journey. I keep telling myself that things could be worse that God doesnt give us more than we can handle. Tonight im asking you to pray that we have a safe journey home tomarrow and a good weekend together as a family before we are back at this again monday. Im not going to have high hopes, im going to be realistic. Im going to pray and try really hard to leave it in Gods hands. Sent from Yahoo! Mail on Android |
This isn't a fairy tale. Our lives have been forever changed by Congenital Diaphragmatic Hernia. We're just trying to find a way to make it work.
Thursday, April 26, 2012
Homeward Bound
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