Long road to UCSF

Alot has been going on. Liam has been struggling with respitory since january. All his issues start with respitory distress then it causes vomitting. Liam went into Childrens on tue, was admitted, then trasfered to UCSF via hellicopter. Now we running test and trying to figure out anwers to questions like: Was Liams CDH really bilateral and not just left? If we repair right side by pulling it down what will his lung look like? If his right lung is squshed in the right side of his chest not able to move properly? We have alot to figure out and we have to come up with a way to do so. Please pray that the surgical team gets on the same page as one another and that they can find answers as well as a solution to the problem. A problem we are now facing is that they told us he needed to repair and to transfer liam to them. Now that hes here theyre saying they dont even know if he needs it. Were frustrated to say the least. And there for a minute it sounded like they thought theyd have him released by monday. I said thats not happening otherwise we wasted over $500 we couldnt waste to get him here. Thats not even the cost to get DH home nor the cost of me staying and im sleeping at bedside. So yes frustration is just a part of how we feel. Liam had a floral today that showed his diaphragm was working but now we need to find out if its working enough. Sent from Yahoo! Mail on Android