This isn't a fairy tale. Our lives have been forever changed by Congenital Diaphragmatic Hernia. We're just trying to find a way to make it work.
Sunday, October 2, 2011
Day 4 UCSF Trip 2
We started out the morning switching not only rooms but floors. We got put into a room with an 8year old who him and his dad were sick. They had that deep wet cough that you know means their sick. Justin asked them if they were taking any medicine and the dad said no. Finnaly after the started coughing every two minutes Justin went and talked to the nurses and had us moved away from them. We just can't take the chance at him getting sick. We've been so careful to not let strangers near him or anyone even family who are even sneezing near him. We have family that has yet to see him because we have to limit the number of people that come in contact to him. I was very upset that they didn't take that into consideration when they placed us in that room. On top of the coughing the little boy was complaining of a stomach ache. Those are all signs of being sick. Within 15 minutes of Justin talking to the nurses we were moved. The surgeons came into to talk to us and they were worried that they had to rush Liam's test thinking we were in a hotel and only had a few days. We let them know we were in the Ronald McDonald House and to not rush him out no matter what. We want to make sure that when we get him home this time we get to stay and not have to be re-admitted for because they missed something. Later the teaching continued on how to place an NGtube. Ofcourse I got volunteered to go first since I'll be the one doing it at home. We practiced on our nurses hand first that way we wouldn't be as freaked out. It took me 4 times to get his NGtube placed because as soon as I got it in he would cough it up and it would come out through his mouth. Finnaly on the 4th try it stayed in place. Then we checked placement and secured it to his face. I made a heart out of the protectant material. I thought it would be neat to for the first one we put in to have a neat shape. Now that I've done a shape, Id like to do more. They look alot better than just a strip on his face. The day flew by with all the learning we were doing, but my head couldn't hit that pillow fast enough.
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