Day 7 UCSF Trip 2

They decided no surgery even though his right side diaphragm is floppy and barely working enough for Liam to breathe. I'm upset that they said they wanted to wait until his respitory issues get worse. My view is to fix it while he's healthy and strong, not wait until he's weak. Liam is still throwing up so we had to come up with another feeding plan. Feeding him through the tube using gravity isnt doing the job. The new plan is to continue using gravity during the day but a night time we're doing continuos feeds, 75ml over a three hour span and it leads into the next feed. We're going to do this for 8 hours straight then no feeds for atleast an hour then start the bottle again. I really pray it works. Barb with Pedi Surg was also able to get his prescription filled for Ranitidine. It turned out to be something simple. The morons at the Rite Aide in our small town just had to look at his insurance to see who it was through to realize they didn't need a TAR to fill it. If it's not one thing it's another. I'm glad that's one hurdle I won't have to deal with when I get home. Now we're just waiting for Liam to put on weight everyday for a few days before we can go home. God willing we will be home friday.