This isn't a fairy tale. Our lives have been forever changed by Congenital Diaphragmatic Hernia. We're just trying to find a way to make it work.
Thursday, October 6, 2011
Day 8 UCSF Trip 2
Liam only gained 20 grams over night but if he has weight gain at tomarrows weigh then they're going to discharge him. Today was also the first day that they actually used the term "failure to thrive" on Liam. It was a very sad moment for me. I had been killing myself to get him to feed what he was supposed to feed and it wasn't working. I pray the NGtube will change that. He's already a different baby today. He spent probably 95-98% of the day awake, happy, smiling and playing. At home he was sleeping 95% of the day and didnt have the energy to do anything. It's deffinately a step in the right direction. We're doing continuos feeds from 8pm to 4am. We started them last night. He did really well, no throwing up, no upset stomach. It's been great. He even flirted with he nurses today and was able to withstand alot of being played with. It's the start of a new for him and us. Here's praying for our discharge tomarrow, getting our family back together and Liam's progress.
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