Day 2 Trip 2 UCSF

It's been one of those days where your sooo glad it's over but been bad enough that it leaves you with the feeling that tomarrow will be worse. Trust me, I'm prepared. We started out the day with an IV. They said he was dehydrated and needed IV fluids. It took 3 nurses and 6 pricks to get the IV in him. He cried, I teared up, Justin stared out the window. They finnaly got it and we were all happy. Dr. Lee came in to talk to us and he didn't want to make a plan beyond getting Liam re-hydrated and bulked up. It does seem that everyone is in agreement that the surgery needs to be done while were here instead of waiting until he gets worse. They're going to start testing on monday or tuesday then make the final decision. Around 5pm Liam started throwing the most horrible fit he has ever had. His cries were those of pain. When swaddling, the pacifier and a bottle didn't work, the nurse started going over everything. The IV alarm kept going off so she kept checking his IV. Come to find out it was kinked under the tape in his hand causing pain. She was able to fix it and therefor stop Liam's fit. While he was throwing a fit he he PVCed. We don't know if it was a true PVC or not because he was throwing a fit so it something we are watching. He also spent the whole day desatting and having a high respetory rate. The only time it wasn't high was when he had fallen into a deep sleep and then his respitory rate became very low, 11's and 13's. Once he woke up it returned to normal. Around 6pm he threw up almost a whole 2oz . My reasoning for that is that she fed him an entire hour early and it was right after his huge fit. I felt so bad. One good thing did come out of that and it was the picture we took of him during his bath. I just don't know what else to say. Alot has happened today and alot that I havn't even written about. As parents were worried and extremely drained. Not only does it seem Liam is doing worse since we've been here but we also don't have our daughter with us. We're on a holding pattern until monday and monday won't come fast enough.