Back to UCSF

We got the call this morning from the Pediatric Surgical team at UCSF. They want Liam there on thursday. We're justing waiting on CCS and medical to approve his stay there and for housing to come through. Please pray that this all gets situated by tomarrow so that we can get this segment of our CDH journey started. Liam hasn't been eating what he's supposed to and it's been worse the last two days so its imperative we get the GNTube soon as possible. Once we're there and the tube is in place they're wanting to do an ultrasound to insure that his right side diaphragm is still moving properly. This will let us know if he needs the surgery or not. It'll also change how long we're going to be stuck in San Fransisco. It's deffinately been a journey for us. It's been hard on my too sit there at my sons side and watch him going through all he's been through. Thank God he's a strong guy and a fighter.