Today is day #6 of hospital admittion #9. We tried 22 calorie formula on Liam today. He didnt tolerate it. When Dr Ligeate came by she had told me that pulmonology had called her saying they wanted Liams oxygen weined. Liam has been desatting twice a day so why on earth would you wein a desatting babies oxygen? Ive gone around and round with them over this. They didnt even have the gull to come talk to me face to face but instead told another doctor to do it. I will be requesting a meeting on monday to discuss these issues along with the fact that he got admitted monday and we havent heard from them until sat. Ligeate gets Liam. She understands that you have to take it super slow with him because everything little thing we do he reacts in a big way. We stopped the biotin and liam hasnt had an emesus in 2days. Thats one problem fixed, for now. Liam has lost half a pound since monday when he was admitted. Im sure tomarrow we will address using a caloric additive. Still no sign of Liam rash returning. His cough is still pretty bad. Really theres judt a few things left to do before we can go home: I know we wont be released before wensday. Im not rushing them or even asking a timeline. It was mentioned because case management wont be back before Tuesday. When we leave this time I want to stay home. Atleast for a month, well until after liams first birthday. The way everthings been going only points to us most likely being admitted for his birthday. Its hard to make it special if your in a hospital. If youd like to send liam birthday wishes you can email him at cherubliam@yahoo.com and ill read them to him. Thank you all for your continued support and prayer and sticking with us through this crazy hellish journey CDH is taking us on. Sent from Yahoo! Mail on Android |
Sunday, May 27, 2012
Calories didnt take/pulmonologys stupidity
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