Tuesday, November 4, 2014

Strep

Lanie and I are both recovering from strep throat. I had such a bad case of it that my throat was very swollen. They put me on prednisone to get the swelling down. I learnt something while on the steroid: the steroid took away my fibromyalgia pain. I had a few blissful days of no body pain. Just the strep. The last two days I was able to get a lot done around the house that I couldn't get to before.

Sadly my last dose was yesterday morning and the pain is comming back. It's worth talking to my doctor about. 

I've also been breaking out Into a butterfly rash with just about anything I eat or drink. It's crazy. But I have to say that those few days of no body pain was amazing, even if I felt sick. 

Lanie is recovering just fine. She never got as bad as I did. I'm glad because it was horrible. Liam and Justin went unscathed by it. 

Liam is still only tolerating his night feed until 4am. I tried again last night to extend it but he started vomiting at 5am. He is only handling 8 hours of the feed versus the 12 they want him on. I'm officially putting my foot down to say enough is enough. This is what is working so this is what we are doing. We can't put a watermelon into a lime. 

I was reminded that these situations have come up in the past over Liam's tube feeds and every time I stood went with my gut, things worked out like they should. So I'm going with my gut again, and my gut says to stop trying to increase when he just can't handle it. Stop trying to increase feeds to try and increase growth you said was good bit because it was working you wanted more. More is not in the books this time. Liam's body says so. We all must learn to accept that there's a time to wave the white flag and and a time to charge on. This is a white flag occasion. I'm ok with that. Or Atleast I understand this is how it has to be. I won't push for more just to loose what we've gained. That's what happened here. 

Not anymore. Liam is who he is. He's good the way he is. He's growing. We need to leave well enough alone for awhile. 



Lanie's reading is soaring to new heights. I am so proud of how well she is doing. I spent a lot of time trying to build her confidence in reading and it's paid off. She reads daily at home. Usually 3-4 short books to her brother, then part of a big chapter book with me. She's even put books on her Christmas list. I found a few of the Ever After High stories on amazon for free download so I downloaded them for her. She's really enjoying them. We stop every so often to make sure she's grasping the story and to talk about what's going on. It's important she understand the story and not just the words. 



Liam sees her with books all the time so he started getting out his books to look through them more often. I love it. It's important to teach them early. I've read to both my kids since they were in my stomach.

Life has so many hard moments where we struggle and sometimes it's so hard to see the bright side. I've been trying so hard to see all our daily blessings. How far we've come and where we might go. Life is as good as it gets. 

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