Liams been sick...

since last wensday. He woke up coughing and a snotty nose. Yesterday I had to go buy him a Vicks vaporizer and the steam liquid meds for it. Thankfully he didnt cough all night llong like he’s been doing. He did talk in his sleep all night long. He even laughed a few times. It was pretty weird and kept me up all night again. Tomarrow he sees his Ped. He will get weighed and get the first of his centiges to protect against RSV. Its been exhausting and has put me in a weird rollercoaster of moods. I tried to take a nap earlier and got woke up by a nightmere. The same one Ive had since Liam was born, of his traggic birth. My biggest nightmere while pregnant with Liam was that he would be breathing when he was born and that he’d be taken away from us in the delivery room. My biggest nightmere came true the night he was born. It became my personal hell. Now Im reliving it in my dreams over and over again. Its something thats been going on spiratically through out the last 16 months. It seems to happen when I get stressed, or during Liam’s hospital admittances, or right after discharge or impending surgeries. I think maybe this time its due to lack of sleep, stress that Liams sick and at this point he could very well get worse and end back up in the hospital for the holidays, and because we’re facing surgery every 2 to 3 months to replace his feeding tube and having to get a mediport put in before all that. Hoping I can face the nightmeres head on to end them. Its due to having PTSD and survivors guilt. Logically I know that I shouldnt feel the way I do at times but Theres a part of my brain that just doesnt give a crap if its logical or not. This is our life, these are everyday struggles.

Brightstart/Physical Therapy Day

Today Liam had Brightstart and Physical Therapy. They were amazed at home quickly he’s learning and how every week he shocks them with new skills. Today he showed them how fast he can crawl, sho we uses his walker the wrong way to walk around the house, how he travels the furnature and more. The physical thereapist said she was very pleased that the only advice she could give was to put him in high top shoes so he wont walk on his toes. She said he was doing so great that there was nothing she could add to the mix. We just set new goals about a month ago and Liam has already surpassed them. This is what happens when Liam stays healthy and away from the hospital for a few weeks…he thrives!! He’s also had a growth spirt. Just 2 weeks ago we started putting him in size 12 month clothes (he’s 15 1/2 months old) and already he’s growing out of them. He’s getting long and chunky. His belly actually has normal baby chubby rolls! Alot of CDHer’s are skinny and up until the last 2 weeks, Liam was no exception. His body was so small his normal sized head looked too big. He is now looking more porportionate and like a normal baby boy. To this we say… WHOOP WHOOP!!

MISSING

MISSING:

Blue Patchwork puppy named "Baba"

 

 

Baba has been with Liam for 6 months of hospital stays, surgeries and was even life flighted with Liam to UCSF.

Baba the patchwork puppy went OFFICIALLY missing today.

Last time we saw him, he was put into the laundry basket for washing.

Baba was the first and only toy Liam has named.

We've tried to substitude other toys in hopes that they will take but...

 

There's no substitution for a boy and his puppy.

If anyone has seen Baba, or knows where I can buy another one here in town or online, please let me know.

There is a reward for the return of Baba, or info on purchasing a new one..

One small boy's happiness and smiles.

Oh and it'll help make mommies life a little easier.

If you have any info on the missing puppy please contact Liam's mommy  :)

cherubliam@yahoo.com