Day of Clinics

Liam had 3 clinics today at Children's hospital. We started the morning off with an upper GI. Which the barium turned his poo white lol. Then on to pulmonologist. It was a quick visit. They're happy with how he's doing and are ok with the asthma attacks. They said they didn't deny his pulmacort refill and have us refills. Going to discuss taking him off the Diurell. Seems the pulmonologist are butting heads with each other. Surgery clinic went ok. They want to do a gastric emptying study because of the on again off again vommiting. She said if its too slow shell have to go on and open up where the stomach meets the intestines. She doesn't want to touch on redoing the Nissan because his spleen is attached to the diaphragm with scar tissue. She said because of that she wouldn't be able to do it laparoscopicly that she's have to open him completely and she doesn't want to do that because she doesn't think he'd heal right. Justin and I don't really see eye to eye. He feels Liam should be left alone and so what if he vommits. He keeps saying the whole point it to get the feeding tube out but doesn't understand that if his stomach isn't emptying than we can't get him off the tube and he will refuse to eat. Me I just want a healthy tubeless baby that can go out in public, crawl around the house without having to follow him around with the tube. Anyhow liam did good today and is now resting.