This isn't a fairy tale. Our lives have been forever changed by Congenital Diaphragmatic Hernia. We're just trying to find a way to make it work.
Showing posts with label elation. Show all posts
Showing posts with label elation. Show all posts
Friday, October 26, 2012
A Look Back at Last October
Labels:
CDH,
celebrate,
celebration,
Congenital,
Congenital Diaphragmatic Hernia,
costumes,
decor,
Diaphragmatic,
elation,
Faith,
family,
Halloween,
Healing,
health,
Hernia,
Home,
Hospital,
li prayers,
pumpkin
Thursday, October 25, 2012
New toys
Liam got a “new” toy today. A lightening McQueen stuffed rocking toy I found a a used kids store, ‘Twice Upon A Time’. I wasn’t sure how well he’d do with it but turns out he isn’t scared. I put him on it, showed him out to rock and he was off. Lanie got a new hat, a cheetah print cat eared hat she picked out, a “new” outfit, and a new ,monster hight dolls. I love being able to spoil my kids now and then. <3 p="p">
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And the random things they do keep me laughing. Like Liam crawling into the lid of his mega blocks container and just sitting there. The standing on his head.
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Labels:
awareness,
boy,
CDH,
Congenital,
Congenital Diaphragmatic Hernia,
Diaphragmatic,
elation,
Faith,
family,
gift,
girl,
Healing,
health,
Hernia,
Home,
life,
love,
Mommyhood
Saturday, July 21, 2012
Miracles
| A year ago today I was sitting in NICU when our primary Sue got the call that that the surgical staff was on their way up. It was time, liam was getting repair surgery that would safe his life and put him on the road to recouvery. I was all alone, Justin was on the road on his way to us. We had all hoped hed make it before surgery. Unfortunately he didnt so I spent a very long 45min in the parents kitchen waiting before the surgeon came in. Justin didnt make it untill 3 hours later. Liams repair surgery being done on my birthday was the best gift I have ever or wilk ever recieve. Now a year later I am reliving the anxiety, the pain and the elation. A year ago today we were blessed to meet little Lulani and her parents. Happy Birthday miss Lulu. We pray you have a special day. Sent from Yahoo! Mail on Android |
Labels:
anxiety,
birthday,
CDH,
Congenital,
Diaphragmatic,
elation,
gift,
Healing,
Hernia,
life,
NICU,
pain,
recouvery,
staff,
surgeon,
surgery,
UCSF
Monday, July 16, 2012
We made it
WE MADE IT!
We made it through NICU,
We made it through Liam's first year,
We made it through the emotional first birthday party.
The Birthday Boy!
Cousin Caleb
David and Kim
Liam enjoying his gift from Uncle and Tia
Uncle Cliff's first time holding Liam
"He's gotten so big"
First time meeting cousin Christina
First time meeting cousin Shannon
Loves his Tia
Cousins Stephanie and Chuck
"Mom im tired"
And two minutes later he's out
Everyone watching Liams 23 minutes video
Liam's first cupcake!
He didn't eat it but he did a great job making a mess so mommy could get some cute pictures.
Our balloon release.
It was very emotional making the speach to let everyone know the significance of the release and the one pink balloon.
The pink balloon was released in memory of Maddie Spence.
When we couldn't be there for the first few days of Liams life at UCSF, the Spence's were there. They prayed over Liam and watched over him even though they didn't know him or us. They were a gift from God and a huge reason why I survived the NICU.
Elva and I have been friends since JR High
My family from Bakersfield
The Bryant's
Labels:
awareness,
balloon release,
birthday,
boy,
CDH,
celebrate,
celebration,
Congenital Diaphragmatic Hernia,
elation,
Faith,
family,
Healing,
Home,
life,
love,
NICU,
party,
prayers,
UCSF
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