Day 2 Trip 2 UCSF

It's been one of those days where your sooo glad it's over but been bad enough that it leaves you with the feeling that tomarrow will be worse. Trust me, I'm prepared. We started out the day with an IV. They said he was dehydrated and needed IV fluids. It took 3 nurses and 6 pricks to get the IV in him. He cried, I teared up, Justin stared out the window. They finnaly got it and we were all happy. Dr. Lee came in to talk to us and he didn't want to make a plan beyond getting Liam re-hydrated and bulked up. It does seem that everyone is in agreement that the surgery needs to be done while were here instead of waiting until he gets worse. They're going to start testing on monday or tuesday then make the final decision. Around 5pm Liam started throwing the most horrible fit he has ever had. His cries were those of pain. When swaddling, the pacifier and a bottle didn't work, the nurse started going over everything. The IV alarm kept going off so she kept checking his IV. Come to find out it was kinked under the tape in his hand causing pain. She was able to fix it and therefor stop Liam's fit. While he was throwing a fit he he PVCed. We don't know if it was a true PVC or not because he was throwing a fit so it something we are watching. He also spent the whole day desatting and having a high respetory rate. The only time it wasn't high was when he had fallen into a deep sleep and then his respitory rate became very low, 11's and 13's. Once he woke up it returned to normal. Around 6pm he threw up almost a whole 2oz . My reasoning for that is that she fed him an entire hour early and it was right after his huge fit. I felt so bad. One good thing did come out of that and it was the picture we took of him during his bath. I just don't know what else to say. Alot has happened today and alot that I havn't even written about. As parents were worried and extremely drained. Not only does it seem Liam is doing worse since we've been here but we also don't have our daughter with us. We're on a holding pattern until monday and monday won't come fast enough.

Day 1 at UCSF 2nd trip

First day re-admitted at UCSF and it's been a long day. We got up at 5am to get up here by noon. Then we waited 4 hours for a room. Finnaly they put him on the 7th floor. He's the youngest patient there. Once we got in a room things moved really quickly. The NGtube was put in. Liam was not happy about that. He spent 3 hours upset and crying off and on. He's already had an xray of his diaphram and i've already talked to the surgeon. Liam will probably have surgery monday or sometime after monday. Thats the plan. We had to leave around 7pm to check into the Ronald McDonald house. When I called to check in the nurse informed me that they had moved him to the open bay where they work so that he can be heard and watched closely. I know that 5am came too early this morning and now I am extremely exhausted. I just need to get some sleep so I can get back up there first thing in the morning.

Off to UCSF...Again

Today's been pretty hectic. My phone has been ringing off the hook. The social worker, pediatric surgical depertment, billing department and nutritionist have all called me today from UCSF. All giving me info or wanting info for Liam's admittance. Those are just the incomming calls. I don't know how I'm even functioning with the little sleep I've gotten the last week. Colicy babies are just not good for sleep especially when they like to be up from 3am to 7am and waking up all night long. I'm crabby and grumpy. Let's just say you don't want to get in my way right now. It's probably a good thing that I'm not having to fight with workers who don't want to work because they would have their heads ripped off. After Liam gets his NGtube in I'll be able to get more sleep. He won't have to be woken up to eat so therefor it won't take as long for feedings. He needs his sleep more than I do and his callories so he can grow.