Before he was born with CDH we had never even heard of it and we learned that that's the case in most scenerios. We are really hoping to make a difference and change that.
When Liam was born he was put on ECMO as a last ditch effort to save him but the doctors didn't think he would survive. Babies born with CDH have a 50% survival rate. Those who have to be put on ECMO have less of a chance. Those who have to be transfered from one hospital to another have their odds cut drastically. In Liam's case the hospital he was born at didn't know he had CDH at first and tried to bag him in an effort to open up his lungs. That's one of the biggests No's you can do and the reason he was so sickly. Because of all this Liam wasn't expected to survive.
We want to spread awareness and help other families effected by CDH. We donate items to our local Children's hospital to help kids admitted find some comfort. Hats, blankets, toys, books and CDH awareness info.
I also create awareness graphics and tshirts.
Our current fundraiser to help us continue to spread awareness is a black shirt with a logo I created.
There is only 11 days left to get this shirt. Know that every penny we get from this fundraiser will go to spreading CDH awareness and donating to our local children's hospital.
http://www.booster.com/s4lcdhawareness
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