Thursday, May 21, 2015

Charging Bull

I've been waiting to blog until my fibromyalgia flare up ended. I thought it's be gone a long time a go but instead this time it's stuck around for a month, with no signs on letting up. Instead I'm get worse with every passing day. 

I'm in so much pain that I can't eat. I just vomit it back up. Liquids seem to be fine though so I've been sticking to dark sodas since they stay down better than clear fluids. I'm not even sure how to describe this other than if anyone knew exactly how I was feeling, then they'd probably have me admitted into the hospital. It's been a while since I've felt this truely bad and to be honest, this episode could very well be the worst I've had. 

But still I hold faith. I'm positive the pain will end (or at the least get better). I believe Gods word that after every storm there will be a rainbow. I'm just waiting for that rainbow to appear. Every morning I wake up and every night I go to bed I hold out hope that tomorrow will be that day. 

I look myself in the mirror and sternly tell myself that today isn't the day we wallow in self pitty but the day put on our brave face and push as hard as we can to make it through the day. Even if that means several naps and pjs. 

I refuse to give up. I refuse to let my heart give up. It's been fluttering more with the increase in pain. I close my eyes, take a few deep breathes and calm myself down. My body is tired after years of stress. I see that now but that doesn't mean I wave the white flag. No.  I keep fighting because that's all I know. I charge forward like a stubborn bull. 

I just pray tomorrow will be better. 

Monday, May 11, 2015

Glow Worm

We got a surprise! So today I got a call from hubby saying to get home because the dog ate Liam's gtube button. Yes folks you read that right. The dog...ate...Liam's gtube. He just decided it was a toy and pulled it out and ended up eating it. Justin said he heard Liam yelling at the dog "no dog no! Bad dog!" So he turned around and saw what happened. Liam didn't cry, he just scolded the dogs. That's a new one for us and now we know that Liam isn't allowed outside with them unless he has on clothes. Apparently the dog really like the smell and taste of the stomach leaking. Smh. Anyway. I came home and cleaned him up and put in a new button. I got to looking at it and that's when I realized it was a glow in the dark button!! We've had a blast with this tonight. We called him a ghost, ET and taught him to say "et phone home" then called him a glow worm. Liam thought it was the coolest thing ever to have his gtube glow. #etphonehome #glowworm #nightlight #glowsinthedark #gtube #amtminione #nonballoon #feedingtubeawareness #cdhawareness