Thursday, May 5, 2016

Graduating To Heartbreak



This week has been such a mix of feelings.
Liam's preschool class spent the week making giant mother's day cards,
as well as preparing for their graduation.
 
These kids have come so far.
They've grown so tall compared to what they started the year at.
They're so smart,
and have learned so much.
 
As I watch them I am both proud and sad.
Proud because of how far they've come.
Sad because my Liam should be right there with them.
 
I won't be getting a giant mothers day card with Liam's handprints.
This year was supposed to be the first year.
The first year my baby boy came home with a mothers day present for me.
These little trinkets and handmade gifts seem just that.
Unless your a mom.
Then these pieces of paper and paint become this heartfelt,
most wonderful gift.
 
I still have all the little thing Lanie made me over the years.
They mean something.
They're not just paper and paint,
popsicle sticks,
glue and glitter.
Our little ones put all their love into making these sweet things.
And when I lost my son,
I also lost these precious moments.
 
He wont wake me up Mothers Day morning,
saying "Happy Modders Day Mommy"
He wont proudly present me with his handmade gifts on Friday.
And that's hard.
 
The preschoolers will be doing a graduation ceremony at the end of this month.
I won't get my son up that morning.
I won't get him showered and dressed nice.
I won't get to take before pictures.
I won't get to drive him to school and proudly hold his hand as we walk to class.
I won't get to see him presented with his "diploma".
I won't be presented with a picture of him wearing a tiny cap and gown.
Because my son is gone.
 
I'll wake up that morning.
Done my minions shirt for their theme.
Drive to the school.
Help the teachers wrangle the kids.
Walk to the cafeteria for their ceremony.
Stare at the seat they're setting a stuffed minion in and Liam's picture.
Politely clap for each child called up to receive their "diploma".
Listen as they most likely mention Liam's name.
Walk with the kid back to class.
And help them with activities.
All while trying not to cry.
All while feeling like my heart has been ripped out of my chest.
 
I didn't just loose my son.
I lost the rest of our lives full of memories.
 
My son will forever be 4 years 5 months and 1 day old.
 
 
 
 
 
 
 
 
 
 
 
 
 

Wednesday, May 4, 2016

May The Fourth Be With You

May 4th 2016
 
We started celebrating May the fourth last year.
The kids' school made a day out of it.
All the kids went to school wearing Star Wars gear.
Posters littered the walls saying,
"May The Fourth Be With You".
"Learn Much Today You Will"
And so forth.
 
Both Liam and Lanie thought it was so awesome.
 
May 4th 2015
 
This year we had to continue doing so.
If not because Star Wars is pretty awesome,
but for Liam because he loved it so.
 
I didn't plan ahead for today.
It hard for me to think ahead for anything.
I normally can't tell you what day it is unless I check my phone.
But still today worked out.
 
Lanie wore a cute Star Wars Bow I made.
 
 
There are things we love/like doing.
And sometimes how we feel about them changes.
Then it becomes something we do out of tradition or habit.
Or in memory of someone we love very much but lost.
So as I kept telling myself to get through the day:
"May the fourth be with you"
 

Monday, May 2, 2016

Letting Go Of The Anger

This post warrants a warning.
It starts out angry. There are statistics.
But I promise you it gets better. That you should keep reading.
Because the end if worth reading.
But it doesn't mean the same unless you read from the beginning.
 
Picture taken May 5, 2014
 
The movies lie.
TV lies.
They show scenes where someone needs CPR.
Most of the time they're able to save the patient.
It happens quickly,
and the patient is fine afterwards.
Life doesn't happen that way.
 
CPR isn't a cure all,
medical miracle.
The patient doesn't miraculously recover within seconds.
 
I find myself angry because I wanted TV to be true.
I wanted to wake up,
and these last almost 21 weeks to have been a nightmare.
That none of this ever happened.
Or that we were back in the hospital,
and they were able to save him.
But that can't happen.
Not unless I'm truly delusional.
And as everyone around me tells me,
I'm not imagining it.
 
Did you know:
Only 23.9% of adult who suffer cardiac arrest while in the hospital,
and receive cpr survive.
40% of children who suffer cardiac arrest while in the hospital,
and receive cpr survive.
Wikipedia says only 15-23% overall survive cardia arrest.
 
According to the US National Library of Medicine,
95% of patients who suffer from a pulmonary embolism,
and have cardiac arrest at the hospital do not survive.
 
They say CPR can be go on for 38 minutes,
and still show favorable brain function after being revived.
The odds of surviving severe brain damage drop 5% per minute.
Death can occur within 4-6 minutes.
 
When Liam was in the ER,
they did CPR for over an hour before stopping.
An hour.
When most doctors call it after 38 to maybe 45 minutes at the longest.
An hour.
Even though Liam would have suffered severe brain damage if he had come back.
They still tried.
Because he was a little boy.
Only 4 years old,
who had an entire life ahead of him to live.
So they tried even when logic told them to stop.
And after they realized he wasn't coming back,
they cried.
They mourned the little boy they couldn't save.
Their hearts broke for the parents whose lives turned upside down.
For the mother whose heart was shattered into a million pieces.
And for that,
there are no words to accurately describe how it felt,
to have a room and hallway full of strangers,
instantly bonded to you.
 
There are a few things I remember from that day.
 
One being that in the midst of all the chaos,
my brain picked out specific noises.
One specific one was when they called a code blue on another patient nearby.
I remember looking around and seeing 30 or more people who didn't move.
I looked at the case manager who was sitting beside me.
He told be there was an adult who coded but that no one wanted to leave.
No one could leave.
No one could stop watching and praying for my son.
It hadn't hit me until that moment how very serious the situation was.
I was being delusionally optimistic.
I thought in my heart and soul that my son would come out of this.
That he would be saved.
I was in shock.
That's when I started making phone calls and texting everyone.
Asking for prayers.
Selfishly asking some to come be by my side,
because I just couldn't go through this alone.
 
The doctor sticks out in my memory as well.
He had been racking his brain on what could possibly be causing this.
He took the time to try to explain to us as he went.
I remember how he looked at me with hope in his eyes,
and he explained how he was sure Liam had a blot clot.
He felt it was the only thing that could of acted as fast as it did.
The problem had been that Liam's veins were so "calcified",
so scarred up from years of IV's and blood draws,
that they weren't able to get an IV into him.
Therefore they couldn't administer they meds he needed to break up the clot.
My husband had been there at this time,
and without looking at each other,
we both told the doctor to do whatever he had to do to save him.
So they put in a bone IV.
They had never heard of a child receiving this adult medication they were going to try.
And they had never heard of it being administered through a bone IV,
but it was our last shot.
Liam's last chance at survival.
It was mere moments later when the doctor was forced to call it.
They had lost the pale weak heartbeat they had gotten.
Before the doctor called it,
he looked me in the eyes.
I could see he'd lost all hope that was there before.
He looked up at the clock and he called time.
He looked at me with a stricken
heartbroken look.
Told me he was sorry and walked closer to the door and stood there.
I was just repeating "no no no".
I watched at those who were working on him,
slowly back away.
How the lady who was doing CPR at that point,
climbed off the gurney,
eyes starring at the ground.
I remember hitting the wall and screaming.
Then running to his side.
I was crying telling him how sorry I was.
At one point I started to become numb.
I looked up and saw the doctor standing outside the room.
I slowly approached him.
I could tell he wasn't sure what to expect from me,
so he was expecting the worst.
I looked at him with tears in my eyes,
and a tear streaked face.
I thanked him for trying everything he could to save my son.
I hugged him.
Then I away,
back to my son.
 
I was told later on that the doctor had to leave the ER floor for a break.
I was told that the loss of Liam was too much for him.
He wasn't a doctor that cries.
ER doctors don't cry.
But he cried.
Several nurses needed breaks as well.
 
I started writing this to vent out all my anger.
To try and work through my pain.
As I wrote this I was able to connect with a greater feeling than angry.
I started feeling thankful.
Blessed even.
When most people would have given up,
this group of amazing people kept trying.
And when they didn't succeed,
they were heartbroken.
They felt the loss of Liam.
It was significant in their hearts.
So even as my son laid there dying,
he changed the world in many strangers eyes.
 
I know that doctor and those nurses will never forget my son.
And that is a gift.
One day I hope that I can share his life with them,
so that they can know his love and his smile,
and remember that more than his passing.
That he was a strong little boy who spent his life fighting,
and by the time he got to them,
he was just too tired to fight anymore.
And that has to be ok.
One day.
 
Picture taken May 2, 2014