Thursday, May 24, 2012

Taking it slow...Liam update

Liam is back on 20 cal. Weve officially tried every other higher cal and he cant handle anything higher. His prevacid has been increased. Theyve ordered a stool study to make sure he has no infection there, if he poops cause he hasnt gone since yesterday around noon. Liam did desat a few times today but hasnt in several hours. He vommited alittle bit, not even 1ml, after meds, great news. We DCed biotin and that looks like a key to his vommiting so yay for that. Hes even sleeping more comfortably. They do think its odd that liam seems to be allergic to biotin that his body needs, and suddenly at that, but given liams past on never following the normal paterns for anything they arent too concerned. Still theres no talk of going home. We have a doc whos has liam before so she knows him and is taking it slow knowing that for every one small thing they do, he reacts big. Shes trying to figure out the puzzle but seems a bit baffled and taking all my suggestions to heart. Buts thats also because she knows i know my son better than anyone. We know hes going to have to have a calorie additive because hes not gaining weight but we dont want to rock the boat with thst yet. That doesnt mean she wont decide to do it tomarow though lol. Please keep our little lamb in your prayers.


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