It's an update

It seems like we are in the midst of being tested yet again.

Last night was the first time in two weeks that Liam had tolerated night feeds at full rate. We're finally back to his old rate of 85 mls per hour and in a few days will have to try yet again to slowly increase the feed until we get to 95mls per hour. 

This morning he woke up with a runny nose. He's also been coughing a lot requiring extra breathing treatments. But those extra treatments are what's allowing him to tolerate feeds. 

I'm suffering from migraines. For the first time in awhile my fibermyalgia seemed to be under control. Pain was minimum. Then out of nowhere the migraines started. They've been lasting up to 3 days long. Give me 1-2 days migraine free before another one strikes. As of 1:20am I've been miserably in pain. I can't function. The migraine was so bad it woke me up from a dead sleep. I was in tears. All I could do to find the slightest bit of comfort was to sit up, leaned over a pillow and rocking back and forth. Meds haven't help. Not even migraine meds. The pain has been so intense I couldn't eat. I've felt sick to my stomach and miserable all day. Wearing sunglasses inside and hanging out in the dark. Late afternoon I fell asleep for 3 blissful hours but didn't wake up much better. I was able to get son food in me as soon as I woke up but then it was back to bed. 

This is my busy week. I have far too much to do than be stuck in bed. I know God won't give me more than I can handle and I'm thankful that Justin has been home to help with the kids today so that I could attempt to get rid of this migraine. I'm also thankful that Liam is finally tollerating night feeds. 

Trying to stay positive about everything. Focusing on what I can be thankful for about the situation instead of how miserable I am and who I can blame. There's no use in blaming. Things happen that's put of our control. 

I wish I could give a better update but this is all I have in me. I can't think straight at the moment but I have faith things will get better. I pray that they will. 

Doubled up on Liam's breathing treatments. 

Was able to braid lanies hair for her this morning. 

And 3 years ago today we began our feeding tube journey. 

Double rope bun

Tonight I decided to play around with Lanie's hair. I had found a tutorial for the double rope bun and though it was adorable. Mine turned out a little different but still super cute. 

It's a bit of an older look for her and in not sure how I feel about that but it's super cute. 

Lanie loved it. I haven't done much with her hair lately besides leaving it down, in a pony tail or messy bun so it was fun to do something different. 

Below if the tutorial I used to make this hair style. 

1) separate into even level pig tails as show.  

2) split each pig tail in two then twist them together and use a hair tie or rubber band to bind it together. 

3) give the twist some volume by fluffy the sections. 

4) wrap the right braid in a circle around your head. 

5) wrap the second twist following the right twist. 

6) fasten the end with a bobby pin. 

7) go through with bobby pins to fasten and adjust as needed. Use hair spray if your planning on leaving it in. 

I used 7 bobby pins in Lanie's hair just to make sure it would  stay put to her running around and playing but didn't use the hairspray. Sure enough after 2 hours of play it stayed put and perfect. I absolutely love this braid and can't wait for my hair to get long enough to use this style on myself.